Tuesday, July 08, 2014

Prevention: Home Visiting Programs Reduce Preventable Deaths

MedicalResearch.com reports good news on prevention from David Olds!

Home visiting programs make a difference.  Have one in your community?

If not, the Children's Alliance may be able to help:
http://www.childrensalliance.org/category/issues/home-visiting
Nurse Visitation During Pregnancy and Infancy Reduced Maternal and Child Mortality
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MedicalResearch.com Interview with: David Olds, Ph.D. Professor of Pediatrics and Director Prevention Research Center for Family and Child Health University of Colorado Department of Pediatrics Aurora, Colorado   80045MedicalResearch.com Interview with: David Olds, Ph.D. Professor of Pediatrics and Director
Prevention Research Center for Family and Child Health
University of Colorado Department of Pediatrics

Medical Research: What are the main findings of the study?Dr. Olds: We’ve conducted a randomized controlled trial of a program of nurse home visiting for low-income women with no previous live firths during pregnancy and the first two years of the child’s life, with randomization of participants beginning in 1990.
In our most recent follow-up of mothers and children in Memphis, those who received nurse-visitation were less likely to have died over a 2-decade period following the child’s birth than those in the control group.  Death among mothers and children in these age ranges in the US is rare and extraordinarily important for what it tells us about the health of the population studied in this trial.
For children, the reduction in death was present for preventable causes, that is, sudden infant death syndrome, injuries, and homicide.  All of the child deaths for preventable causes were in the control group, for whom the rate was 1.6%.  None of the nurse-visited children died of preventable causes.
The reductions in maternal mortality were found for two nurse-visited groups combined for this report: one received prenatal and newborn visitation and a second received visitation during pregnancy and through child age two.  Overall, mothers assigned to the control group were nearly 3 times more likely to die than those assigned to the two nurse-visited conditions.  The relative reduction in maternal mortality was particularly pronounced for deaths linked to maternal behaviors — suicide, drug overdose, injuries, and homicide; for these external causes of death, 1.7% of the mothers in the control group had died, compared to 0.2% of those visited by nurses.
Medical Research: Were any of the findings unexpected? Dr. Olds: All of these findings were unexpected as we thought that the rates of maternal and child mortality for women and children in these age ranges would be too infrequently occurring to discern program effects.
Medical Research: What should clinicians and patients take away from your report?Dr. Olds: Nurse visitation during pregnancy and the early years of the child’s life among low-income mothers with no previous live births is a promising means of improving maternal and child health and reducing maternal and child mortality.
Medical Research: What recommendations do you have for future research as a result of this study?Dr. Olds: These findings need to be replicated with other highly disadvantaged low-income families.
Citation:
Olds DL, Kitzman H, Knudtson MD, Anson E, Smith JA, Cole R. Effect of Home Visiting by Nurses on Maternal and Child Mortality: Results of a 2-Decade Follow-up of a Randomized Clinical Trial. JAMA Pediatr. Published online July 07, 2014. doi:10.1001/jamapediatrics.2014.472. 
And more from HealthDay.com
Home Nurse Visits May Improve Survival of Moms, Babies
Deaths were far more common when poor women did not receive follow-up care, study findsHome Nurse Visits May Improve Survival of Moms, BabiesBy HealthDay ReporterMONDAY, July 7, 2014 (HealthDay News) -- Home visits from nurses during pregnancy and a child's first two years help improve survival odds for both mothers and children, according to new research.
The study followed more than 1,100 mother-child pairs from disadvantaged, urban neighborhoods in Memphis, Tenn., for two decades. Poor women have much higher death rates than wealthier women, according to background research in the study. And their children are more likely to die from accidents, homicide and sudden infant death syndrome, research has shown.
"Often these are mothers living on the margins of society," said study researcher David Olds, professor of pediatrics at the University of Colorado, Aurora. "And we now know if we reach out to them and engage them, we can make a big difference in the health and development of the mothers and the children, including their survival.''
The study, published online July 7 in JAMA Pediatrics, began in 1990. Researchers assigned the first-time mothers-to-be to one of four treatment groups.
One group received only transportation for prenatal care. Another received transportation plus screening for infants and toddlers to evaluate their development. A third group received transportation plus home visits. A fourth group received all the services.
Mothers without home visits were about three times as likely to die during the follow-up period as the moms who got nurse visits, Olds found. About 3.7 percent of those who weren't visited died compared to 1.3 percent of those who received all the services, including visits by nurses.
The children benefited as well. By age 20, those whose mothers received all of the services were still alive while 1.6 percent of kids whose moms got only transportation and screening had died, the study found.
The results didn't surprise Dr. David Mendez, an attending neonatologist at Miami Children's Hospital in Florida.
"Sometimes an extra pair of hands, an extra pair of eyes to see what's going on in the household with a new baby can be important," said Mendez, who was not involved in the study.
"Nurses perhaps take a role similar to what a good grandmother does," he said. "They are able to give the mother cues as to when the babies aren't doing so well [and may need medical help]."
The program -- known as the Nurse-Family Partnership -- operates in about 500 sites, Olds said. "The schedule calls for nurses to visit about once every two weeks during pregnancy and once a week for the first six weeks after delivery and then essentially every other week until the baby is 2 years," Olds said.
In this study, nurses completed about half of those visits, he said. In some cases, the get-togethers were difficult to schedule because some of the mothers became homeless and were hard to reach, he said.
While visiting, nurses discuss how to have a healthy pregnancy and how to be attentive to a child's needs, among other topics. On average, the publicly funded program costs about $9,000 per family over the 2.5 years of enrollment, Olds said.
According to one analysis, the return in savings from unneeded hospitalization and other health care services is about $5.70 for every dollar spent, he said.

The program is funded in various ways, he said. Some women have been covered under the Affordable Care Act. Others are supported by various state funds, he said.
The link between the at-home visits and improved survival is very strong, Olds said, although he can't say with certainty it is a cause-and-effect relationship.
However, "in this study, within the limits of statistical probability, we can say with 95 percent confidence that the mothers and children visited by nurses were less likely to die," he said. "That is almost as good as it gets."
More informationTo learn more about the prenatal period, visit the American Academy of Pediatrics.
SOURCES: David Olds, Ph.D., professor, pediatrics, University of Colorado, Aurora, Colo.; David Mendez, M.D., attending neonatologist, Miami Children's Hospital, Miami, Fla.; July 7, 2014 online JAMA Pediatrics

Sunday, June 29, 2014

Teaching SBS Prevention Education in Schools: Speed Bump at the Churchville-Chili Middle School

Churchville-Chili Student Says Not Everyone Could Handle Shaken Baby Syndrome Lesson

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Rochester: Churchville-Chili Student Says Not Everyone Could Handle Shaken Baby Syndrome Lesson
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A class at Churchville-Chili Middle School intended to teach students the dangers of Shaken Baby Syndrome is drawing controversy, after a Facebook post by a parent questioning the subject matter took on a life of its own.
The school district has investigated, and said in a statement that the allegations are not accurate, but said in the future, a counselor will be on hand in the classroom during the lesson.
The class is Family and Consumer Sciences. It's designed to prepare students to become life ready.
Angelina Libardi took the class at the beginning of the school year. She the lesson included video of a man being arrested for shaking his child, then showing that child hospitalized and clinging to life, and that was a bit much to take.
After the video, Angelina says the teacher would draw names at random and invite students to shake a specially designed doll where the brain lights up to show injuries caused from shaking.
"When I was called, I didn't want to go up, it was uncomfortable. I was very upset after the video, it was very sad. Some people would shake it but they were weird about it, they weren't happy, it was upsetting to them,” said Angelina, a 7th grader.
It's believed the concerned parent's son was in the class last week. The parent then posted on Facebook that "some kids found this hilarious and beat the snot out of that baby, throwing it against the wall."
A blogger picked up on this and used the post with the headline "Middle School Kids Learn How to SHAKE BABIES UNTIL THEY DIE."
Angelina believes this topic may be too advanced for 7th graders.
"There's some people in my grade that aren't as mature, can't take it as much. I don't know how to explain it. Maybe they're not as grown up and don't understand it as much."
- See more at: http://rochester.twcnews.com/content/news/746620/churchville-chili-student-says-not-everyone-could-handle-shaken-baby-syndrome-lesson/#sthash.4z7jhUsD.dpuf

Churchville-Chili Student Says Not Everyone Could Handle Shaken Baby Syndrome Lesson

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Rochester: Churchville-Chili Student Says Not Everyone Could Handle Shaken Baby Syndrome Lesson
Play now

A class at Churchville-Chili Middle School intended to teach students the dangers of Shaken Baby Syndrome is drawing controversy, after a Facebook post by a parent questioning the subject matter took on a life of its own.
The school district has investigated, and said in a statement that the allegations are not accurate, but said in the future, a counselor will be on hand in the classroom during the lesson.
The class is Family and Consumer Sciences. It's designed to prepare students to become life ready.
Angelina Libardi took the class at the beginning of the school year. She the lesson included video of a man being arrested for shaking his child, then showing that child hospitalized and clinging to life, and that was a bit much to take.
After the video, Angelina says the teacher would draw names at random and invite students to shake a specially designed doll where the brain lights up to show injuries caused from shaking.
"When I was called, I didn't want to go up, it was uncomfortable. I was very upset after the video, it was very sad. Some people would shake it but they were weird about it, they weren't happy, it was upsetting to them,” said Angelina, a 7th grader.
It's believed the concerned parent's son was in the class last week. The parent then posted on Facebook that "some kids found this hilarious and beat the snot out of that baby, throwing it against the wall."
A blogger picked up on this and used the post with the headline "Middle School Kids Learn How to SHAKE BABIES UNTIL THEY DIE."
Angelina believes this topic may be too advanced for 7th graders.
"There's some people in my grade that aren't as mature, can't take it as much. I don't know how to explain it. Maybe they're not as grown up and don't understand it as much."
- See more at: http://rochester.twcnews.com/content/news/746620/churchville-chili-student-says-not-everyone-could-handle-shaken-baby-syndrome-lesson/#sthash.4z7jhUsD.dpuf
A class at Churchville-Chili Middle School intended to teach students the dangers of Shaken Baby Syndrome is drawing controversy, after a Facebook post by a parent questioning the subject matter took on a life of its own.
The school district has investigated, and said in a statement that the allegations are not accurate, but said in the future, a counselor will be on hand in the classroom during the lesson.
The class is Family and Consumer Sciences. It's designed to prepare students to become life ready.
- See more at: http://rochester.twcnews.com/content/news/746620/churchville-chili-student-says-not-everyone-could-handle-shaken-baby-syndrome-lesson/#sthash.4z7jhUsD.dpuf
A class at Churchville-Chili Middle School intended to teach students the dangers of Shaken Baby Syndrome is drawing controversy, after a Facebook post by a parent questioning the subject matter took on a life of its own. 
The school district has investigated, and said in a statement that the allegations are not accurate, but said in the future, a counselor will be on hand in the classroom during the lesson. 
The class is Family and Consumer Sciences. It's designed to prepare students to become life ready.
- See more
Hard to tell if this is over-reaction on the part of a few students or a not fully thought through presentation on the part of the instructor ( and let me say that I've been to a few NYS FCS meetings and talked to several FCS classes, and the teachers I've met there are an amazing group of talented educators).

I was invited to talk to a sixth grade class at one of our middle schools.  When I asked how many of the kids were babysitting, it turned out about 10% were taking care of siblings under age 5, and some were caring for siblings as young as 1.  And almost none had taken any sort of babysitting class...

We didn't use a demo doll, but we did watch a video: the older version of Portrait of Promise, not the version with the more realistic computer animation.

It required some thinking on how to phrase things, but the kids seemed to get the point that bad things could happen if they lost their temper, and they needed to be prepared to cope with frustration.

Personally, I think the Baby Think It Over simulator dolls, which have a random crying mode that can last a half-hour, are more useful in teaching that lesson than the SBS simulator dolls.

Kids are caring for kids.  They need to know how to do it right.

Hope this school board doesn't do what many seems do when "controversy" strikes: take the easy way out and stop doing whatever it was that caused a complaint.

Teaching about SBS

Saturday, May 10, 2014

Hospital Based Education in the UK...Cheers Northumbria and NSPCC!

Good news from the UK!

Education for new parents about what they can do to help keep their child safe is always a good thing...Cheers!



Baby advice for new parents


Jane Scott NSPCC with Tanya Mason Northumberland
Jane Scott NSPCC with Tanya Mason Northumberland

A new programme that aims to support new parents with the stress they can feel when their baby cries is being piloted in Berwick.
The Coping with Crying programme will see community midwives from Northumbria Healthcare NHS Foundation Trust showing new parents a powerful film about caring for a crying baby.
Looking after a crying baby can be challenging and parents can sometimes struggle to soothe their baby. Concerns about babies’ crying are one of the most common reasons that new parents seek help from professionals.
When their baby cries, it is common for parents to feel frustrated, and in the worst cases they can lose their temper and harm their baby.
The NSPCC estimate that around 200 babies a year in the UK suffer from serious head injuries as the result of being shaken, hit or thrown. Evidence shows that crying is often a trigger for this sort of harm.
The NSPCC film provides parents with a range of supportive tips and advice about soothing a baby and managing their own stress. It also tells them about the dangers of shaking a baby.
It was created in partnership with experts at Warwick Medical School and Great Ormond Street Hospital, and is based on a similar programme in America which reduced the number of babies who suffered from non-accidental head injuries by nearly half.
Janice McNichol, head of midwifery at Northumbria Healthcare, said: “We fully understand that caring for a new-born baby can be extremely stressful – particularly for new parents - and we are committed to providing the highest quality support to mums and their partners.
“Our community midwives are parents’ first port of call following the birth and offer expert advice on how best to care for their baby.
“We are always looking at research and finding new ways of helping to safeguard our most vulnerable patients and have been using the NSPCC’s ‘Handle with Care’ leaflet for more than a year.
“We are delighted to work in partnership with them on this pilot and provide an additional resource to help parents cope with a crying baby while raising awareness of the potential risks of these situations.”
Over the last two years the NSPCC has been running this programme in 24 hospitals and birthing units and over 30,000 parents have now seen the film.
Chris Cuthbert, head of strategy and development for the NSPCC said: “This is a ground-breaking new programme based on the best international evidence. It is a relatively simple and low cost intervention, and our evaluation shows that it is helping parents to manage the pressures of new parenthood and soothe their baby.”
Cathy Warwick, chief executive of the Royal College of Midwives, added: “Midwives see first-hand the stress and worry that parents experience when their baby cries, and need to support parents through this. Everyone looking after a baby needs to know that shaking can have very serious consequences. The NSPCC film helps midwives to communicate this important but difficult message.”

Friday, September 06, 2013

Military Families and Shaken Baby Syndrome: Not Better, Not Worse

Researchers at the Kempe Center, at the University of Colorado School of Medicine, have found that an infant in a military family has about the same risk of suffering head trauma from violent shaking as civilian babies. Department of Defense records show between 26 and 34 out of every 100,000 babies born into military families had substantiated abusive head trauma in the first year of life. That was similar to civilian rates during the study period. As Reuters Health reports:
However, "Within the military there are some children who are particularly at higher risk, including the children of enlisted men," said Dr. Desmond Runyan, director of the Kempe Center for the Prevention and Treatment of Child Abuse and Neglect at the University of Colorado School of Medicine in Aurora. 
Baby boys, as well as those born early or with birth defects, were also at increased risk for shaken baby syndrome. So were infants with young mothers, parents in lower pay grades or mothers in the military. Babies between two and four months old are at the highest risk of shaken baby syndrome, which can cause seizures and permanent brain damage. One in four children with the condition dies as a result.
In general, shaken baby syndrome is most common among families who are poor, have little social support and are under stress, Runyan and his colleagues said. Inconsolable crying is one of the main triggers for shaking. "These risk factors for shaken baby syndrome can get magnified a little bit due to the stresses of being in the military," Runyan told Reuters Health.
Many military families are removed from their extended families, live in lower-quality housing and earn relatively low wages, all of which could make child abuse more likely, he said. On the other hand, being in the military may protect against some forms of abuse, like neglect, since members of the military have to pass an aptitude test, have steady employment and have access to family support programs. Past studies on the topic have been inconsistent: some showed an increased risk for shaken baby syndrome among military babies, while others failed to show a link.
One issue, Runyan said, is that some of those studies were done on military training bases where there are a lot of young families - so the results may represent the experience of mostly higher-risk infants. For the new study, the researchers looked at Department of Defense medical records for 676,827 infants born between 1998 and 2005 and linked them to investigative findings from military family advocacy programs confirming cases of abuse. Of those infants, 230 had substantiated shaken baby syndrome and 73 had probable or possible shaken baby syndrome.
Using U.S. Centers for Disease Control and Prevention criteria for a diagnosis of shaken baby syndrome, the researchers calculated there were 34 substantiated cases in the first year of life for every 100,000 military babies during the study period. They then did the same analysis with criteria that have been used to study shaken baby syndrome among civilians, which produced a rate of about 26 cases per 100,000 babies. That is similar to the 28 cases per 100,000 infants found in a past study of civilian babies in 2000, the researchers write in Pediatrics.
Gia Gumbs, who led the study at the Naval Health Research Center in San Diego, California, told Reuters Health in an email that studies of civilian families "may underestimate the number of cases" of shaken baby syndrome if they use less sensitive criteria for diagnosis.
One hopeful note:
"The military has been very responsive and active to the concerns raised about shaken baby syndrome in infants," Runyan said.
SOURCE: bit.ly/15tWduU Pediatrics

Tuesday, August 13, 2013

Safer Child Care: Comment Period on HHS regulations

A window briefly reopened for comment on proposed health and safety changes to the federal child care regulations.
 
The federal government announced today that  it will extend the comment period on proposed changes to its Child Care and Development Fund regulations to August 23, 2013.
 
The changes are intended to strengthen health and safety requirements.

This is an opportunity to point out 
the importance of requiring training and 
education for child care providers, about the vulnerability of young children 
to inflicted head injury and about the need to have coping skills for the inevitable moments of frustration and anger that come with caring for young children.

That message can come from anyone who knows a child 
affected by an inflicted head injury, but the parents of a child injured by a care provider can perhaps best emphasize the point.
Nationwide standards for education about SBS and the vulnerability of young children 
to inflicted head injuries would not cover all child care providers, but it would be a good start.  

A national standard could also provide impetus and motivation for child care providers 
to talk with parents and other caregivers, not just to keep children safe, but to keep themselves safe.

The Federal Register Notice has instructions for submitting comments.  Link to Notice
Notice:
 
This announcement is to notify you that the Office of Child Care (OCC) has reopened the comment period for the Child Care and Development Fund (CCDF) Notice of Proposed Rulemaking (78 FR 29441). Today a notice was published in the Federal Register to formally reopen the comment period for 10 days. Public comments on the proposed rule are due by 11:59 p.m. (eastern daylight time) on Friday, August 23. Comments can be submitted electronically by visiting the Federal Register Web site link below, or you can submit written comments to the following address: Office of Child Care; Aerospace Building, Fifth Floor East; 370 L’Enfant Promenade, S.W.; Washington, DC 20024; Attention: Cheryl Vincent, Office of Child Care.


 
 

Monday, May 27, 2013

It's the same all over: perspective on child abuse reporting in Malaysia

The topic of the study abstracted below was child abuse reporting in the Malaysian press, but the conclusions are relevant to media reporting in the US.

The mainstream press largely reports on the consequences of child abuse: the death and injury of a child, the tragedy that falls suddenly on a family, and, far less less frequently than one might expect, the punishment of the perpetrator.

It is the uncommnon story that examines the circumstances that precipitated the abuse.  Even less common is the story that looks at prevention programs.

The coverage of cases varies inversely with how well we can understand it.  A simple search on Google News shows that the most uncommon cases, involving horrendous cases of deliberate and persistent physical abuse, are picked up by hundreds of media outlets across the nation.  The much more common case of a parent or caregiver losing control and inflicting injury on a crying infant rarely reaches outlets outside of the community in which it happens.

Allow me to offer two possible reasons.

First, those horrendous acts of physical violence transgress some of our strongest norms and define evil for many.  The perpetrators of such acts are beyond the pale, and such acts mark foreign territory for most of us.  By allowing us to divide and define the world into good and evil, in which evil acts are done by bad people unlike us - "them" - they help define "us."   Framing child abuse properly aids understanding, and understanding aids prevention.  Good work on framing from PCAA.

Second, acts of momentary rage violate the same norms, but are far too understandable for many.  To the extent that the perpetrator is someone like ourselves, it creates cognitive dissonance, and we struggle for explanation.  Those stories are not consistent with our division of the world, as "good" people do bad things.  So, we look less deeply, and the grey areas of the story attract less media interest.

For example, Google Trends shows differential responses to "shaken baby" and "Casey Anthony."

The final point of interest: society seems to devolve blame on the mother.  The universality of that response especially obvious if you read the comments on most shaken baby news stories.  A substantial proportion blame the mother for her choice of caregiver or just for putting the child in child care.

And so we justify our choices.

Unfortunately, many comments suggest that some still feel parents are invulnerable to the circumstances that precipitate abuse.  The statistics show otherwise, and those who believe that "good" parents are not at risk of haring their child simply have acquired a false sense of security.
The ‘social tsunami’: Media coverage of child abuse in Malaysia’s English-language newspapers in 2010
Sara Niner  Monash University, Australia
Yarina Ahmad Monash University, Australia
Denise Cuthbert School of Graduate Research RMIT University, Australia
  1. Sara Niner, Sociology, School of Political and Social Inquiry, Monash University, Building H Caulfield Campus (H.5.43) 900 Dandenong Road, Victoria 3145, Australia. Email: sara.niner@monash.edu
Abstract
Since the early 1990s, Malaysian society has displayed a deepening concern over steady increases in reported cases of child abuse in the country. For many Malaysians, knowledge of this issue comes from the mainstream media. This research analyses media coverage of child abuse in two mainstream English-language daily newspapers throughout 2010.
The analysis focuses on how this issue is presented and ‘framed’ in the media. Through the use of simple episodic framing and a distorted focus on extreme cases of child abuse, media coverage internationally obscures the reality of child abuse as it occurs within the context of contemporary social, cultural, religious or political systems. This hinders any genuine understanding of the problem, leading to flawed solutions. We find these international patterns largely replicated in Malaysia.
Furthermore, gendered socialization processes in Malaysia make women and mothers principally responsible for family life and there is a tendency to blame and punish mothers for child abuse even when they are not the perpetrators. Internationally, child welfare experts and academics have advised the media to focus reporting on the underlying causes of abuse so that the issue can be better understood and addressed and this advice is pertinent for Malaysia today.  

Sunday, February 03, 2013

From Boston MA to Enid OK, Missing the Real Point on Keeping Babies Safe

From the Enid News & Eagle, a reminder that there is often an interesting contrast between the words said, and the headline that results..

Shaken baby syndrome often happens with first-time parentsBy Phyllis Zorn, Staff WriterEnid News & EagleENID, Okla. — Marie Holsten, district director for Oklahoma Department of Human Services, said incidents of shaken baby syndrome often happen with first-time parents, but that’s not always the scenario.
Shaking of the baby can happen when the child is in the care of anyone not prepared to deal with the crying, or when the person caring for the child already is overwhelmed and frustrated by other things, and the crying of the baby becomes the trigger that prompts their frustration to boil over, she said. 

It's actually a fairly good article, as far as it goes.  However, this is how it ends:
Holsten emphasizes parents should be mindful of who they leave in charge of their children.
“A lot of people are going back to work,” Holsten said. “Make sure you get a licensed day care provider. You need to be careful who you are leaving your child with.”
While there's nothing wrong with recommending that parents hire a licensed day care provider, there's much more than needs to be done besides checking for a license (it should be no surprise that not everyone who claims to be licensed actually is...).  My thoughts:

Good article, but hiring a licensed day care provider is not sufficient by itself:  a parent needs to take three more steps. 
 First, ask every caregiver if they know that children as old as 5 years of age are vulnerable to an inflicted head injury, and if they have participated in a safety education program that included info about shaken baby prevention.  Second, ask if they have a coping plan for the inevitable moments of frustration.  Third, give them permission to call you if there are times when they need to talk.  
If it feels awkward, ask yourself if you'd rather leave your baby with someone who doesn't know how vulnerable babies and infants are, who doesn't have a plan to cope, and who is going to be afraid to call you if they need to.
If it still feels awkward, just let the caregiver know that you only want to help her (or him) know what they need to know to help you keep the child safe.
The advice from Enid is not much different than this MD blogger who writes on the Boston.com site

Three things parents can do to keep their child safe from child abuse
Posted by Dr. Claire McCarthy  January 23, 2013 11:25 AM
While this is really understandable, I think that instead of just being terrified we should use this as a moment to really think about what we can do to keep children safe from child abuse. While nothing can prevent all abuse, there are things that parents can do. Here are three:  
Never shake a baby. Shaken Baby Syndrome (SBS), which is when children are shaken hard enough to cause brain damage, is the leading cause of child abuse death in the United States. The most common reason SBS happens? Inconsolable crying. When you mix a baby that won't stop screaming with a stressed-out, overwhelmed caregiver, bad things can and do happen.
If you've got a baby that screams a lot, check in with your doctor--but often it's just normal crying. And in those cases, you need to take care of not just your baby but yourself. Sometimes the best way to care for both of you is to put the baby in a safe place, like his crib, and take a moment to calm down. Here in Massachusetts, you can call the Parental Stress Hotline at 800-632-8188.
Make sure that everyone who cares for your child knows the dangers of shaking. To learn more about SBS and how to prevent it, visit the CDC's Heads Up: Prevent Shaken Baby Syndrome website.
Know the signs of child abuse. It's not always obvious. The Department of Health and Human Services has a fact sheet that has all sorts of information about recognizing abuse and neglect, but here are some of the signs that parents and caregivers should watch for:
  • Any unexplained bruise or other injury (or an explanation for one that doesn't make sense)
  • Frequent bruises or injuries, even if an explanation is given
  • Changes in behavior, such as acting withdrawn, sad, angry or afraid. An occasional off day is usually normal, but if the changes are persistent or recurrent it could be a sign of a problem.
  • Changes in appetite or sleep (including trouble falling asleep, nightmares, or bedwetting). Again, only worrisome if persistent--and there can be lots of other explanations.
  • Behaviors or statements from children that are odd or not normal for their age (like talking about sex)
  • Negative comments about the child from the parent or caregiver--and/or lack of nurturing/happy interactions with child
  • The child expresses fear or dislike of the parent/caregiver
Remember--these are just a few of the signs, and could have other explanations. But if you see them, let someone know--like your doctor, or the Department of Children and Families.
Check out all your child's caregivers thoroughly. If you use a daycare center or family daycare, be sure that they are licensed--and check with your local licensing board to find out if there have ever been any concerns or complaints. If you use a nanny or babysitter, do background checks--including in other states the person has lived. Since most child abuse happens when a child is left alone with a caregiver, doing your homework is really important. Get plenty of references. Ask lots of questions--and be sure you communicate with them regularly about your child's behavior and needs. Ask friends and neighbors who might interact with the nanny or babysitter to keep an eye out and let you know if anything concerns them--and make surprise visits regularly.
It's impossible to know everything about anybody, no matter how well you do your homework--that's what so scary about this. Keeping your antennae up can help; if for any reason something about a caregiver doesn't feel quite right to you, listen to that feeling. Don't ignore it. It's always better to be safe--after all, nothing will ever be more important than your child.
For more about how all of us can help to prevent child abuse, visit the website of Prevent Child Abuse America.
    This is what I said then (and I'll say it again):

Saturday, January 12, 2013

Perspective: Train a Parent, Spare a Child

Bruce Feiler has an interesting article in the New York Times about parent and child interaction:  "Train a Parent, Spare a Child."

That title caught my eye.  

It would be an apt one for advocating new parent education to prevent acts of abuse.

While the article covers more common ground - whether should parents bribe kids in the tween ages to induce behavior - it does point up the need to educate parents about the parentchild (no space intended) interaction.

That includes educating parents about the consequences of their choices not just for the two people involved, but for the interaction between them.

The article's worthwhile reading for those of us with children who've taken the first steps across the threshold of free will.

It's also worthwhile to consider how it applies to parents in the period between birth and preschool, when children aren't able to state their intentions, let alone negotiate behaviors.

That's when training a parent to respond appropriately to frustration may indeed spare a child.

NB It will also be interesting to see how parenting styles and parent personality traits inform the comments on the article.  When articles in the Times discuss parenting styles, the commentary becomes quite the Rorschach test....


Sunday, November 25, 2012

A Tool to Understand Stress: Better Golf, Better Parenting?

The Week End Wall Street Journal reports on new technology to measure stress in golfers.

Using a wristband loaded with sensors and a Bluetooth connection, an iPhone and some inferential physiology, cognitive neuroscientist Robert Goldberg developed a tool that seems able to conveniently measure stress in real time.

There are some interesting parallels to be drawn between the performance anxiety of golfers and the anxiety of new parents, and more that could be explored.

For example, when the device was tested on a couple of MIT golfers, the less experienced golfer was learning a new putting stroke; while his body indicated he had a high stress response, he said he  wasn't aware of it.  Yet, once it was identified, his coach emphasized a different technique and his stress level declined.

If the device proves to be a reliable and effective tool, there are lots of interesting questions relevant to prevention that could be explored:

- are there differences between men and women in the stress levels experienced by new parent (a question that certainly applies to golfers too...)?  [a pair of interesting studies from Sweden looked into m/f differences in reported stress levels - link1 - link2 - (interesting, fathers report less anxiety about incompetence than mothers.  Does that reflect society's lower expectations? ]
- how does learning and experience affect individual responses to stress?
- how does the learning curve of parenting correlate with stress levels?  Behavior changes is fairly rapid during early childhood.  Do parents who learn how to learn about developmental behavior fare better than those who don't?
- how do learned stress responses change during early childhood developmental stages?  In the article, one experienced golfer shows diminished stress when he follows his routine to set up a put.  That works well for the routine of golf, but what happens when parents learn a routine that comforts the needs of their three month old, then continue their behavior when it no longer is relevant to the growing child's needs?  Toddler conflict may prove to have roots in stress cycles...
- what individual factors affect the stress response?  Are there markers for adverse responses?
- do parents experience and acknowledge their actual stress levels?  What factors make it easier to acknowledge their experience?  Knowing that it's a common response?   Just knowing what is happening to them?  Given reports of people who give birth without knowing they were pregnant, perhaps prevention education needs to focus on how to normalize the experience.

Given that one common prevention, just put the baby down and walk away, is premised on the caregiver being able to recognize that their stress level is increasing, it would seem worthwhile to validate that assumption on some inexperienced caregivers.

If not, the primary caregivers may need to learn some coaching techniques.

The article mentions that the developer is exploring the possibility of marketing the device to pregnant women.  Wouldn't it be great if this start up expanded that vision to pair up with a parenting education program on a prevention research initiative?

Could lead to a marketing edge:

"We'll help you get comfortable with your new child, and your golf game."

Might just pique the interest of a few guys...


GOLF JOURNAL
November 23, 2012
Using Science to Ward Off the 'Yips' 
Brain Scientist Designs App to Measure Stress While Golfing
By SCOTT CACCIOLA
The golf course is a treacherous, unforgiving place, where even the world's best players are vulnerable to stress-induced fits of madness.
For years, PGA Tour player Kevin Na has agonized over his swing as he waggles his club in the tee box six, seven, eight times—and then waggles it some more. Robert Karlsson abruptly withdrew from the British Open in July after finding that he simply couldn't swing, so tortured was his mental state. Just this month, Charlie Beljan was hospitalized after an early-round panic attack at a PGA Tour event in Lake Buena Vista, Fla., before he somehow summoned the wherewithal to return for the final 36 holes and win the tournament.
Lest we forget, golf is as much about the mind as it is the body—ask anyone who has had the "yips." The game can be so debilitating that the help of a neuroscientist sometimes seems required. Enter Robert Goldberg, a Ph.D. in cognitive neuroscience who has spent the last two years chipping away at one of the sports world's greatest challenges: How do you prevent golfers from blowing a gasket?

The result of Goldberg's research is a wristband that measures stress in real time by shooting small electrical charges into sweat glands. That data is then relayed via Bluetooth to an iPhone app, which displays stress as a line graph, with peaks and valleys, depending on how rattled the player feels. Goldberg hopes that golfers—and their coaches—can use that information to understand what triggers stress on the course and then go about unearthing solutions.
Goldberg, who recently left his post as a visiting scientist at the Massachusetts Institute of Technology, said he first considered the intersection of sports and stress when he was 12 years old and working as a standard-bearer at the Greater Hartford Open. The playing group that he accompanied one afternoon included Ken Green, a PGA Tour professional and notorious hothead who "lost his s—," as Goldberg put it. By the end of his round, Green was so disgusted with his play that he gave young Goldberg his Ping putter. Even then, Goldberg was fascinated by the mental aspect of the game.
"It got me wondering: How do things like that hold people back from peak performance?" Goldberg said. "There are guys who have all the physical skills but don't have the right mind-set."
Goldberg said his work focuses on the adrenal system—glands near the kidneys that release hormones in response to stress. When that happens, the body attempts to cool itself by perspiring. The small electrical charges in his device essentially measure how much sweat accumulates in the skin. "We can see a response in under a half a second," Goldberg said. To isolate these fluctuations in stress, the device has a built-in "accelerometer" that accounts for the effect of motion, as well as a temperature gauge.
Goldberg recently tested his work on two MIT golfers—one of the team's top players and one of its most inexperienced. There were patterns, he said. With the top player, a sophomore named Jon Warneke, Goldberg found that Warneke's stress level remained static during his swing—an indication that Warneke felt comfortable with his mechanics. And his stress level actually decreased during the act of replacing his ball on the green before putting. "There must be something about that routine that I find very calming," said Warneke, a double major in theoretical math and physics.
Putting was a different story: His stress level skyrocketed. Though putting is a self-described weakness, Warneke said he had no idea that his body was enduring physiological changes as a result of stress. He was too focused on the task at hand to notice. But even small amounts of stress can cause shortness of breath, an increased heart rate and/or butterflies in the stomach, any of which are kryptonite for a golfer who's trying to keep his hands steady as he lines up an 8-foot par putt.
Once the problem areas are identified, however, there are solutions, Goldberg said—breathing techniques, for example, or a revamped pre-shot routine. The graph won't lie: It will show whether the new approach is effective.
"MIT kids in general don't really show stress," MIT golf coach Jesse Struebing said. "So it's neat for me to see what's going on inside their heads. You don't know exactly what they're thinking about, but you can see from the graph that there's stuff going on up there."
As for the relatively inexperienced MIT player, his stress level always spiked at the exact moment of impact—just as his club face struck the ball. Struebing said he'd been working with the player on his swing, and it was a sign to him that the player wasn't confident in what he was doing. "It told me that maybe I needed to take a new approach," Struebing said. Once he did, he found that the player's stress level at impact decreased over the course of the round and his play improved.
Golf is one subset of a larger project for Goldberg, who has formed a company called Neumitra with two colleagues, Anand Yadav and Safiyy Momen. The idea, Goldberg said, is that anyone can use the device to monitor and manage stress. Of particular interest to the group are those who have post-traumatic stress disorder, though Goldberg said the company plans to target a broad mix of consumers—students, pregnant women, tech geeks. He said he expects the device, known as "Bandu," to hit the market in 2014.

Saturday, November 24, 2012

Prevention Education in Vacaville, California: Simulator Doll

The Vacaville Reporter brings news of a prevention effort in California.

Recognize the motivation, but have to wonder about how likely this prevention technique would have been in preventing the case that gave rise to the initiative (although, since the article doesn't say how the person charged and the baby are related, or if they are...).

Would the target audiences have included him?  Can't tell, but one wonders how many 42 year old men would opt to be in the audience at the places they intend to offer the demonstration.

Nor can one tell whether this is The Strategy, or merely one part of a comprehensive strategy that uses hospital based education for new parents, school based parenting education for students and baby-sitters and mandatory education for child care providers to teach parents and caregivers how they can help keep children in their care safe from inflicted injuries.

Let's hope the latter.


A broad, comprehensive, non-selective, inclusive campaign that educates all parents and all caregivers about what they can do to keep children safe, using a message that minimizes pushback, is more likely to be shared, and more likely to be self-sustaining.

It would be useful to others looking for evidence-based programs if the reporter checks back in a year to see what's actually been accomplished.

Sometime between Thanksgiving and Christmas, a fairly large amount of new exercise equipment is purchased.  Sometime the following spring, spring cleaning moves a large amount of unused exercise equipment from garages and basements to yard sales and the like.

Prevention resources being scarce, no one wants to see them recycled that way...



The goal: No more Shaken Baby Syndrome cases in Solano County 
By Catherine Bowen/ CBowen@TheReporter.comPosted:   11/24/2012 01:08:26 AM PST 
A shake and the crying stopped.
On Sept. 16, a 5-month-old Fairfield baby was hospitalized with brain bleeding, said Fairfield police Sgt. Kevin Carella. The baby's head had started swelling, before arriving at the hospital and medical staff immediately recognized the symptoms.
A short time later, 42-year-old Kenneth Burroughs was arrested by Fairfield police on suspicion of child abuse causing great bodily injury, Carella said. The baby remains in the hospital.
An estimated 1,200 to 1,400 babies are treated for Shaken Baby Syndrome (SBS), a term used to describe child abuse caused by the vigorous shaking of an infant -- often in anger -- to get the child to stop crying or fussing, each year, according to the California Department of Social Services. Of that number, 25 to 30 percent die as a result of their injuries, and many others suffer lifelong complications.
Authorities suspect many more children also fall victim to SBS but do not receive treatment.
The severity of September's case rocked Fairfield authorities, and launched them into an outreach mission to educate others on just how devastating the effects of SBS can be, according to Carella, who works with both the department's Major Crimes and Family Violence units. 
To bring their demonstration home, the department purchased a RealCare shaken baby doll simulator, while a second doll was donated by the Twilight Rotary Service Club.
Each of the life-sized dolls is fitted with a see-through plastic head, Carella explained. The RealCare Shaken Baby cries inconsolably, like some real infants do and, when the doll is shaken a device inside its head measures the force on the brain area. The simulator's cries stop abruptly and red LED lights show the specific parts of the brain that suffer damage.
Carella said it is the department's hope to provide training at Solano Community College, local high schools, service clubs and other law enforcement agencies for future parents, babysitters and child care providers.
"Our hope is to demonstrate to people how little force it takes to injure a child," Carella said.
"It is our goal to reduce the number of SBS incidents in Fairfield and our surrounding communities with this valuable instruction," Carella stated. 
The training is comprised of specific instruction on topics including:
* The many reasons babies cry and helpful ways to soothe them,
* Signs and symptoms of SBS,
* Physical results of SBS-related brain injuries, and
* A pledge to never shake a baby.
For more information, or to schedule a demonstration contact Carella at 428-7354 or Debra Shibuya with the Fairfield Family Violence Unit at 428-7770.
Follow Staff Writer Catherine Bowen at Twitter.com/cbowen4.













Sunday, November 18, 2012

Abusive Head Trauma (SBS) - Costs, Benefits and Prevention: New Zealand Does the Maths!


The abstract below is from the November 2012 edition of the Journal of Child Abuse and Neglect.  

The full article is behind a paywall, but the abstract indicates this study from the folks at Starship Children’s in NZ will be a solid step forward in making the economic case for prevention.  Click on this link for the abstract

More good work from the Starship!

PS. This seems to provide a good template for replicating the analysis on our side of the Equator, no?
----------------------------------
Primary prevention of pediatric abusive head trauma: A cost audit and cost-utility analysis.J Friedman, P Reed, P Sharplin, and P KellyChild Abuse Negl, November 8, 2012
Te Puaruruhau (Child Protection Team), Starship Children's Hospital, Private Bag 92024,Auckland 1142, New Zealand. OBJECTIVES: To obtain comprehensive, reliable data on the direct cost of pediatric abusive head trauma in New Zealand, and to use this data to evaluate the possible cost-benefit of a national primary prevention program.
 METHODS: A 5 year cohort of infants with abusive head trauma admitted to hospital inAucklandNew Zealand was reviewed. We determined the direct costs of hospital care (from hospital and Ministry of Health financial records), community rehabilitation (from the Accident Compensation Corporation), special education (from the Ministry of Education), investigation and child protection (from the Police and Child Protective Services), criminal trials (from the Police, prosecution and defence), punishment of offenders (from the Department of Corrections) and life-time care for moderate or severe disability (from the Accident Compensation Corporation). Analysis of the possible cost-utility of a national primary prevention program was undertaken, using the costs established in our cohort, recent New Zealand national data on the incidence of pediatric abusive head trauma, international data on quality of life after head trauma, and published international literature on prevention programs.
 RESULTS: There were 52 cases of abusive head trauma in the sample.
 Hospital costs totaled: $NZ 2,433,340,child protection: $NZ 1,560,123,police investigation: $NZ 1,842,237,criminal trials: $NZ 3,214,020,punishment of offenders: $NZ 4,411,852 andcommunity rehabilitation: $NZ 2,895,848. Projected education costs for disabled survivors: $NZ 2,452,148, and the cost of projected lifetime care:$NZ 33,624,297.  Total costs were $NZ 52,433,864, averaging $NZ 1,008,344 per child.[NB. current exchange rate 1.00 NZ = .81 US] Cost-utility analysis resulted in a strongly positive economic argument for primary prevention, with expected case scenarios showing lowered net costs with improved health outcomes. CONCLUSIONS: Pediatric abusive head trauma is very expensive, and on a conservative estimate the costs of acute hospitalization represent no more than 4% of lifetime direct costs.If shaken baby prevention programs are effective, there is likely to be a strong economic argument for their implementation. This study also provides robust data for future cost-benefit analysis in the field of abusive head trauma prevention.

Monday, February 27, 2012

Georgia: As the House Looks at Comprehensive Education for New Parents, a Few Suggestions

Anyone from Georgia? Pending legislation in Georgia calls for the creation of a Joint Study Commission on Education for Parents with Newborn Children. It suggests that the state that's home to CDC may be taking a comprehensive look at education for parents of newborns.
[um, just noticed the bill actually says "mothers" should have an oppportunity to see a video in the hospital - while there apparently isn't need to educate the bill drafters that infants usually have two parents, they may need to know that mothers aren't the only ones who benefit from the information, and there are a number of reasons why the hospital should try for both parents**]..
Hopefully, CDC staff in Atlanta who are already involved with SBS prevention education and social media, and/or who are new parents themselves, will work with the bill drafters and the state health department to ensure the proposed initiative is as effective as possible.

CDC's already got a good guide to SBS prevention for health departments.

Thinking about social media would be a good place to start.

For example, why limit "video" to a DVD hand out to watch at home when this generation of parents have grown up with YouTube, iPad and iPhones, and are probably posting video on Facebook from the hospital?
- Lo and behold, Sutter Hospital's Facebook page for announcing births.
- And while he probably had his people do it, Sweden's Crown Prince posted his daughter's birth announcement on Facebook
Imagine if the nurse or parenting educator comes in, introduces both parents to the video highlights on an iPad, then downloads an app to both parents' mobile devices that allows them to download and watch a video course from the health department, the hospital and the AAP.  

A course keyed to the developmental stages of their child (especially important with the rate of premature births).   In their choice of language.

Think new parents might need motivation? Offer coupons from local stores - Starbucks and newborn diapers if they finished the course - and links for new baby products.

Think that parents might appreciate the thoughtfulness and effort by their hospital, pediatrican and health department? That it might influence their recommendations to friends and relatives who are expecting about hospitals?  Think they might tell their Ob-Gyn it was a good experience?

Think Disney or Target might be looking for an opt-in marketing opportunity?

And who better to share the knowledge among other new parents, child care providers, etc. than a new parent?

Why not a Facebook page and YouTube Channel for the state prevention programs?

Etc...

If you're in Georgia and want to thank your legislator, the bill info and a list of sponsors follow...

2011 Bill Text GA H.B. 1159, GEORGIA 151ST GENERAL ASSEMBLY -- 2011-12 REGULAR SESSION, Introduced: February 23, 2012, A BILL TO BE ENTITLED: AN ACT To amend Article 1 of
Chapter 1 of Title 31 of the Official Code of Georgia Annotated, relating to general provisions relating to health, so as to provide for the creation of the Joint Study Commission on Education for Parents with Newborn Children; to provide for its composition and duties; to provide for the distribution of informational videos on health related topics by hospitals and other health care facilities to mothers of newborn infants; to provide for a definition; to provide that such requirement is contingent on available funding; to provide for related matters; to repeal conflicting laws; and for other purposes. ..................................

Sponsored By (1) Pruett, Jimmy 144th (2) Dobbs, Elly 53rd (3) Lindsey, Edward 54th (4) Gardner, Pat 57th (5) Harden, Buddy 147th (6) Ashe, Kathy 56th
**Well, the bill says hospitals should offer "mothers" opportunity to view in hospital, but that the "parents" will get a copy to take home and watch. Most states encourage the hospitals to encourage both parents to participate. Perhaps even more important if the the male in the household is not related to the child...

(b)(1) ... the department shall distribute informational videos in an appropriate format to each health 52 facility in order to provide the information described in Code Section 31-1-14 and in this Code section to each mother of an infant born in such health facility. To the extent feasible, each health facility shall provide an opportunity for each mother of a newborn infant to view the video while in the health facility. Each health facility shall also provide a copy of such video, as furnished by the department, to the parent or parents of a newborn at the time of discharge from the health facility.