Tuesday, December 16, 2008

Time magazine gives some context to the recent Lancet study on the incidence of abuse, and the difficulty of getting accurate statistics...

Based on a review of research conducted on child abuse between 2000 and June of this year, researchers estimate that 4% to 16% of children are physically abused each year in high-income nations, including the United States, United Kingdom, Australia and Canada. As many as 15% are neglected, and up to 10% of girls and 5% of boys suffer severe sexual abuse; many more are victims of other sexual injury. Yet researchers say that as few as 1 in 10 of those instances of abuse are actually confirmed by social-service agencies — and that measuring the exact scope of the problem is nearly impossible.

The issue lies in the delicate nature of the crimes — and the consequences of intervention. Many cases of abuse are rife with potential for long-term harm of the child, whether or not the assault is reported. The decision to report is rarely clear-cut, says Theresa Costello, director of the National Resource Center for Child Protective Services, who was not involved with the new research. "Professionals want to advocate for their clients, but they also know the reality of the public child-welfare system," she says. "There is a natural professional dilemma when you see a kid and you think, 'I should make a report,' but you're not sure you want to subject that child to the system."

Indeed, the second study in the Lancet analysis, citing previous research, reveals that physicians reported only 6% of children's injury cases to protective services, even though they suspected the injury was a result of abuse 10% of the time. Further, researchers say that many more cases of maltreatment — particularly of sexual abuse — are never even suspected, and the victimized children never come forward to report the assaults.

"The official statistics agencies produce are conservative estimates of probably the lowest level of child maltreatment," says Dr. Cathy Spatz Widom, a psychology professor at John Jay College of Criminal Justice, who specializes in the long-term effects of child abuse and is a lead author on one of the Lancet studies.

Unfortunately, the article only mentions prevention in passing:
The ultimate goal is to prevent abuse in the first place, says Widom, and to protect the well-being of children who have been victimized. "It would be wrong to assume that all maltreated children are going to turn out to have all of these problems," she says.

The Lancet has a series of articles on incidence and treatment of child abuse. There is one on injury prevention, and the abstract for this survey of prevention techniques sounds interesting:
The Lancet, Early Online Publication, 3 December 2008
doi:10.1016/S0140-6736(08)61708-0
Interventions to prevent child maltreatment and associated impairment

Prof Harriet L MacMillan MD a , C Nadine Wathen PhD b, Prof Jane Barlow DPhil c, Prof David M Fergusson PhD d, Prof John M Leventhal MD e, Heather N Taussig PhD f
Summary

Although a broad range of programmes for prevention of child maltreatment exist, the effectiveness of most of the programmes is unknown.
Two specific home-visiting programmes—the Nurse—Family Partnership (best evidence) and Early Start—have been shown to prevent child maltreatment and associated outcomes such as injuries. One population-level parenting programme has shown benefits, but requires further assessment and replication. Additional in-hospital and clinic strategies show promise in preventing physical abuse and neglect.
However, whether school-based educational programmes prevent child sexual abuse is unknown, and there are currently no known approaches to prevent emotional abuse or exposure to intimate-partner violence. A specific parent-training programme has shown benefits in preventing recurrence of physical abuse; no intervention has yet been shown to be effective in preventing recurrence of neglect. A few interventions for neglected children and mother—child therapy for families with intimate-partner violence show promise in improving behavioural outcomes.
Cognitive-behavioural therapy for sexually abused children with symptoms of post-traumatic stress shows the best evidence for reduction in mental-health conditions. For maltreated children, foster care placement can lead to benefits compared with young people who remain at home or those who reunify from foster care; enhanced foster care shows benefits for children.
Future research should ensure that interventions are assessed in controlled trials, using actual outcomes of maltreatment and associated health measures.
One day's worth of SBS cases, from Google News (duplicates from Florida, but Montana, Ohio, California, Indiana...

Searching for shaking baby:

Trial Begins For Man Accused of Shaking Baby to Death
WOKV, FL - 23 minutes ago
Prosecutor Brian Aull told the court that Vessey admitted shaking the girl because she was crying. "After saying that he didn't for an hour, ...

Murder Trial Begins For Dad Accused Of Killing Baby
News4Jax.com, FL - 59 minutes ago
Testimony began on Tuesday in the murder trial for a father who police said admitted to shaking his baby daughter because she was crying. ...

Trial begins for Jacksonville NAS sailor in baby's death
Florida Times-Union, FL - 5 hours ago
By Paul Pinkham Former Jacksonville Naval Air Station sailor David Vesey admitted shaking his 3-month-old daughter but not hard enough to kill her, ...

Euclid man to be sentenced for injuring infant girl
The Plain Dealer - cleveland.com, OH - 10 hours ago
Doctors said the injuries were caused by shaking or being struck with extreme force, prosecutor's spokesman Ryan Miday said. ...

Former Anderson man pleads guilty to killing his infant son
Record-Searchlight, CA - 12 hours ago
Copeland initially said that he did not remember shaking his infant son, although he later changed his statement and said he shook him "forward and back and ...

Mother guilty of harming infant
Cincinnati.com, OH - 17 hours ago
20, 2007, incident, trying to get the baby to stop crying. But when Carr noticed something wrong with her child after the shaking, she called 911. ...

Hospital Sees Record Number Of Shaken Baby Cases
WISN.com, WI - Dec 15, 2008
The experts say it's normal for a baby to cry 2 to 3 hours a day. Yet often, it's a parent's inability to deal with those cries that prompts the shaking, ...


Searching for "shaken baby"

Murder Trial Begins For Dad Accused Of Killing Baby
News4Jax.com, FL - 58 minutes ago
Doctors, who said they suspected the baby's injuries were consistent with shaken baby syndrome, called police. Detectives questioned both parents and ...

Shaken baby trial continues in Missoula
KPAX-TV, MT - 11 hours ago
Missoula County prosecutors will continue to present their case against a Missoula man accused of Felony Aggravated Assault on Tuesday. ...

Former Anderson man pleads guilty to killing his infant son
Record-Searchlight, CA - 12 hours ago
The baby died at Mercy Medical Center in Redding, and an autopsy showed several injuries consistent with "shaken baby syndrome," including damage to the ...

Case continues in death of infant
Greeley Tribune, Colorado - 19 hours ago
... Medical Center in Greeley, where hospital officials advised Greeley police the baby’s injuries were consistent with that of shaken baby syndrome. ...

Miles' original sentence upheld
The Banner-Graphic, IN - 22 hours ago
The baby was diagnosed with shaken baby syndrome, and was hospitalized for a time at Riley Children's Hospital in Indianapolis
In 2006, Wisconsin adopted legislation that required education in hospitals, child care centers and schools.

Today's news from Wisconsin is not so good...

The question, of course, is (a) whether the educational requirements are being implemented at all, and, if they are, (b) are they being effectively implemented?

If you'e from Wisconsin, or know someone who's given birth there recently, let us know what's really happening in the hospitals and other locations where education is required...

Sunday, December 14, 2008

The New York Times discussed the prospects (somehow that word doesn't seem appropriate in this context) for Medicaid cuts in New York. Actually, they're coming, in New York and most other states. It might be more appropriate to say the article gives a view into the abyss.

The relevance to prevention? Hospitals do wonderful things, and aren't just bricks and mortar edifices, but they constitute a significant investment in physical and organizational structure. Eliminating the clutter of inefficient and unnecessary things on hand is always hard than reducing spending on prevention.

It's also harder when organized constituencies are involved. Hospital unions will have a say in employee cuts. And, as noted in the article, a lot of Medicaid costs result from long term care for the elderly.

Those on the losing side are likely to be women and children, who make up the bulk of the Medicaid population, but don't require the same level of services. Unfortunately, if we cut primary care and prevention services, we cut the opportunities to ensure things stay that way.

Simple education for parents can save a significant portion of Medicaid dollars now being spent by parents who bring children to emergency departments. Similar results resulted in West Virginia (see fn 14)
New York State spends more on Medicaid than any other state, $2,283 per capita per year, twice the national average of $1,026, a state Health Department spokeswoman said.

Dr. Richard F. Daines, the state health commissioner, said the new budget would lay out a plan to pay more to primary care and clinic doctors, while shifting that money away from hospitals, which in theory would see fewer patients because of better preventive care.

At the health forum, Mr. Baker said, “It’s not about curtailing generosity, it’s about whether or not we’re getting real value for the money that we’re spending.”

Hospital executives say that they are not opposed to making that shift, but that cutting Medicaid is counterproductive if the goal is to promote primary care.

“There is a fundamental dilemma or contradiction here on the state level between their stated health care policy reform agenda, which is all about robust primary and preventive care and better disease management, and the inevitable outcome of these cuts,” Alan D. Aviles, president of the city’s Health and Hospitals Corporation, said. The corporation runs the city’s 11 public hospitals, which get about 65 percent of their income from Medicaid.

“I don’t know whether the executive proposal will find a way to balance those problems, or whether the deficit will be so overwhelming it’s going to trump everything else and it’s only going to be about cost-cutting,” Mr. Aviles said.

Saturday, December 13, 2008

In light of the "new evidence" claims that are making the rounds, the Per Cale blog has an interesting post on myths and cognitive biases
...It seems that myth denial with accurate information may actually reinforce the myth.

University of Michigan researcher Norman Schwarz had volunteers read a flier from the Centers for Disease Control about flu vaccination myths. Within 30 minutes of reading the flier, older adults recalled 28% of the false statements as being true. After 3 days, they thought 40% of the myths were factual.1
Younger people did better at first, but three days later they made as many errors as older people did after 30 minutes. Most troubling was that people of all ages now felt that the source of their false beliefs was the respected CDC.1
...So denying myths actually reinforces them to some extent.The experiments do not show that denials are completely useless; if that were true, everyone would believe the myths. But the mind's bias does affect many people, especially those who want to believe the myth for their own reasons, or those who are only peripherally interested and are less likely to invest the time and effort needed to firmly grasp the facts.

The research also highlights the disturbing reality that once an idea has been implanted in people's minds, it can be difficult to dislodge. Denials inherently require repeating the bad information, which may be one reason they can paradoxically reinforce it.

Shankar Vedantam. Persistence of Myths Could Alter Public Policy Approach.
Washington Post. September 4, 2007. Page A03.
http://www.washingtonpost.com/wp-dyn/content/article/2007/09/03/AR2007090300933_pf.html

And this interesting post by John Allen Paulos on three common cognitive biases

A legislative update from the Brain Injury Association of America:

As the House and Senate Appropriation Committees are working on conference negotiations for FY09 funding bills, BIAA joined a sign-on letter for increased funding of TBI programs. The timeline for action is unclear, but it appears the Democratic leadership wants FY 2009 appropriations bills on the President’s desk shortly after his inauguration on Jan. 20th.

BIAA also issued a Legislative Action Alert, urging supporters to contact their Congressional representatives and support increased funding for TBI programs.

BIAA also sent letters to newly elected Members of Congress explaining the massive national public health issue which brain injury represents and urging them to join the Congressional Brain Injury Task Force.

The Centers for Disease Control and Prevention released new prevalence estimates for traumatic brain injury (TBI) in the United States. Reflecting the use of more conservative methodology, the CDC determined that although the annual incidence estimate has not changed (1.4 million individuals), the annual prevalence estimate for long-term TBI-related disability has decreased (from 5.3 million individuals to 3.2 million individuals).

BIAA reminded advocates, clinicians, researchers, policymakers and the public that the 3.17 million people living in the U.S. with a long-term disability need and deserve ongoing specialized rehabilitation, lifelong neurological disease management and individualized services and supports in order to maximize their health, independence and happiness.”

And let's not forget that the cost of pediatric brain trauma injuries is substantial....

At the request of the VA, the Institute of Medicine issued a report on “The Long-Term Consequences of Traumatic Brain Injury.” The IOM review of the scientific literature details numerous health effects associated with mild, moderate, and severe closed TBI.

[It's free if you read it online]

Friday, December 12, 2008

Preterm births are rising, and the complications that are associated with them suggest that there is likely to be a lot of stress for the child and the family.

Child offers resources for parents of preemies...

There are lots of other issues, of course, but prevention education in the NICU seems prudent, especially on coping skills, and not just during the very difficult time in the NICU, but when parents and child leave the NICU for the world.

Kudos to the March of Dimes for the work they're doing to help bring attention to this issue...and to the fact that, as a whole, the US can do better
Heather Payne has an interesting blog on the British Medical Journal site.

Right now, it's discussing the consequences of another child protection failure.

One of the curious by-products are the comments it attracts from those who inhabit a different reality and posit theories about Vitamin K deficiencies.

I've a great deal of admiration for those who work in the world of child protection and aren't satisfied with things as they are. It's an extraordinary person who can sustain that effort...

Resource: Education Begins At Home 2008 House Hearing

Worth reading - the House Committe on Education and Labor, chaired by Rep. George Miller, held a hearing on the Education Begins At Home Act.

The House report reviews the evidence and finds good reason to support home visiting services.
Research shows that these programs, which provide a variety of services ranging from pre-natal medical care to school readiness and family literacy programs, can help improve student achievement, reduce child abuse rates, improve early identification of developmental delays and disabilities, and improve access to health services.

What's not to like?

Funding won't be available until 2010 and, in a time when the President-elect is proposing to establish a Chief Technology Office for the federal government, there is absolutely no mention of using social media to effectively and efficiently reach new parents.

And while the SBS Prevention Act would provide $20 million for hospital based prevention education ($5 per birth), the EBAH was amended to reduce the funding for hospital based education to $1 million - for a broader hospital based education program.

Hospital based education is accessible to almost everyone, not just those states and regions that are fortunate enough to have a good home visiting program in place (and EBAH will only fund organizations in place for three years, which leaves some doubt as to how it will benefit states and communities without programs).

Perhaps we can persuade Congress to fund education now as an economic stimulus initiative: say $20 per birth for education about SIDS, SBS and colic. It might help hospitals offset, just a tiny bit, the coming wave of Medicaid cuts.

And reduce by 50% the amount of unreimbursed money that hospitals spend to treat the consequences of inflicted head injuries...

I wonder if the American Hospital Association has a blog search running....

Thursday, December 11, 2008

A biomechanical analysis finds that shaking can produce retinal hemorrhages

A finite element infant eye model to investigate retinal forces in shaken baby syndrome.
Steven Alex Hans, Sebastian Y Bawab, and Michael L Woodhouse
Graefes Arch Clin Exp Ophthalmol, December 4, 2008;
Department of Mechanical Engineering, Old Dominion University, 238 Kaufman Hall, Norfolk, VA, 23529-0247, USA, shans001@odu.edu.

BACKGROUND: Shaken baby syndrome (SBS) is a form of abuse in which an infant, typically 6 months or less, is held and submitted to repeated acceleration-deceleration forces. One of the indicators of abuse is bilateral retinal hemorrhaging. A computational model of an infant eye, using the finite element method, is built in order to assess forces at the posterior retina for a shaking and an impact motions.

METHOD: The eye model is based on histological studies, diagrams, and materials from previous literature. Motions are applied to the model to simulate a four-cycle shaking motion in 1 second with maximum extension/flexion of the neck. The retinal forces of the shaking motion, at the posterior eye, are compared to an impact pulse (60G) simulating a fall for a total duration of 100 ms.

RESULTS: The shaking motion, for the first cycle, shows retinal force means at the posterior eye to be around 0.08 N sustained from the time range of 50 to 200 ms, into the shake, with a peak in excess of 0.2 N. The impulse, area under the curve, is 15 N-ms for 250 msec for the first cycle. The impact simulation reveals a mean retinal force around 0.025 N for a time range of 0 to 26 ms, with a peak force around 0.11 N. Moreover, the impulse for the impact simulation is 13 times lower than the shaking motion.

CONCLUSION: The results suggest that shaking alone may be enough to cause retinal hemorrhaging, as there are more sustained and higher forces in the posterior retina, compared to an impact due to a fall. This is in part due to the optic nerve causing more localized stresses in a shaking motion than an impact.
It's time to start planning for Shaken Baby Syndrome Awareness Week 2009 (the third full week of April).

Three suggestions for things you can do:

- ask your federal, state and local representatives to adopt a resolution or proclamation recognizing SBS Awareness Week 2009, acknowledging the reason why we need awareness and prevention efforts, and thanking those hospitals, child care organizations, schools and other groups for their efforts to educate parents and caregivers about their opportunity to help protect children from injury.

As an example, South Carolina adopted this resolution

In 2008, Senator Chris Dodd and Congresswoman Nita Lowey sponsored SBS Awareness Week resolutions in the Senate and House.

- ask those representatives to visit a hospital, child care center or school to thank the educators

- write a letter to the editor of your local newspaper or email the editor of a blog or website that deals with parenting. Ask them to write a story, post a poll or tak other action to bring attention to SBS during SBS Week.

It works...
Looking for SBS awareness posters?

See those on our website. If you have questions or comments, or just like them, please leave a note here...

The Website URL - http://skippervigil.com/links.htm

PS. Notice what our posters don't mention? Neither does our brochure. There must be a good riddle in there...
New York Magazine interviewed Rachel Maddow, a MSNBC talk show host, and mentioned an interesting point in her academic career:
Maddow likes to joke that her admission to Stanford was a “mistake,” but her professors remember the Castro Valley, California, native as a serious scholar from the beginning. “She was a brilliant student,” says Roger Noll, former director of the Public Policy Program at Stanford, “one of those that only come around every few years or so.” When she graduated in 1994, her undergraduate thesis—which explored the shift in the perception of AIDS patients from “the other” to “one of us”—won a medal for excellence. “I still send students to that thesis as a model,” says another professor, Debra Satz.

That's the transition child abuse prevention has yet to make...

Wednesday, December 10, 2008

Good news about a local prevention effort in Flint, Michigan...

Hurley doctor starts effort to combat Shaken Baby Syndrome
by Elizabeth Shaw | The Flint Journal
Tuesday December 09, 2008, 5:52 PM

FLINT, Michigan -- It was only 10 seconds.

In October, police testified in Genesee County Circuit Court that Paul D. Powell II, 17, shook his 8-month-old daughter Takyra Rene Banks "for a period of about 10 seconds" because she would not stop crying. Powell is now awaiting trial for murder and first-degree child abuse in the July 17th death.

It's something Hurley Pediatric Chief Resident Dr. Faisal Mawri has seen too often -- and never wants to see again.
Flint Journal extras For tips on soothing an unhappy baby:

• www.thehappiestbaby.com.

What to do with a crying baby:

• Make sure all the baby's needs have been met and there is no physical or medical cause that requires attention.
• Put the baby in a safe place (crib, bassinet or play pen) and leave the room for a few minutes to calm down.
• Take several deep breaths and count to 10.
• Say the alphabet out loud, read a poem or close your eyes and think of something pleasant.
• Do housework or another task to distract your attention.
• Create a noise to get the baby's attention such as a blender or vacuum cleaner.
• Hug and cuddle the baby. Wrap the infant in a blanket and carry him or her around.
• Call someone to ask for help.

Source: Genesee County Health Departmen
t

"I went into pediatrics because I love children. It is very difficult to see a baby fighting for its life with a tube in its throat, trying to breathe, and to know it was caused in an instant when a mother or father was simply upset because the baby won't stop crying," said Mawri. "What has surprised me in talking to parents here is how many do not know that shaking a baby could cause these fatalities."

Mawri hopes to change that with a $3,000 grant he received from the American Academy of Pediatrics' Community Access to Child Health to launch "Never Shake Your Baby.

It's a good thing Dr. Mawri is doing. I just wish there was more collaboration among advocates, so we could all work more efficiently and effectively. There is a peculiar tendency among advocates to reinvent wheels.

For example, there is a regional SBS prevention coordinated by DeVos Children's Hospital. And in Saginaw, the Child Abuse Council is using Baby Think It Over dolls (OK, infant simulators) to increase awareness.

It's a big world, with lots of parents to educate. Let's collaborate...

And I just have to say that there doesn't seem to be a compelling need to spend money develop a new prevention video. Let's hope that part of the plan got transmogrified by the reporter.

Sunday, December 07, 2008

The Kaiser Commission on Medicaid and the Underinsured updated its Medicaid primer, which should help understanding of the costs associated with SBS.
Medicaid: A Primer

This primer provides an overview of the basic components of Medicaid, the nation's largest health coverage program, which covers 59 million low-income individuals, including children and families, people with disabilities and the elderly who are also covered by Medicare. Medicaid is also the dominant source of the country’s long-term care financing.

The primer examines how the program is structured, who it covers, what services it provides, and how much it costs. Medicaid is jointly financed by the federal and state governments, and the states administer the program within broad federal guidelines. As a result, programs vary across states. The updated primer includes tables examining the state-to-state variation in eligibility, enrollment, and spending for Medicaid enrollees.
MindHacks has a post on the Discover article that was disappointing...

Here's my comment in response:

There are two "controversies" about SBS:

- does SBS exist at all, and

- are the injuries described as SBS in a particular case actually the result of an inflicted injury (a subspecies of which is whether shaking alone can cause such injuries).

In any particular case, making the diagnosis of a brain injury and inferences about its cause may not be easy, especially if the child survives. Expertise outside the ordinary and diligent investigation are necessary to understand cause in each case.

But the fact that there are apparent failures of inquiry in individual cases (I say apparent because the failure of the government to sustain its burden of proof in a criminal conviction is not a test of the scientific proof underlying the hypothesis) is not proof of the "myth" that the title of this article suggests: that the majority of head injuries are not inflicted.

Mark Dias is a pediatric neurosurgeon who has treated children with inflicted head injuries. Shortly after his first son was born, he realized how frustration can lead to anger. He began an education project at Buffalo area hospitals to educate new parents about the vulnerability of young children to head injuries and how they can cope with frustration.

Once they had the opportunity to learn about how they could help protect their child, inflicted head injuries in the Buffalo area dropped by nearly 50%. http://www.wchob.org/shakenbaby/

To me, this is compelling evidence that inflicted injuries DO happen: sometimes from ignorance, sometime from indifference, and sometimes because caregivers just aren't prepared.

Obviously, it is necessary to distinguish the consequences of an inflicted head injury from other possible causes. That can be very difficult to do in some cases, but clearly it should be done to ensure that the rights of the innocent are protected and the guilty are punished.

But if I were writing a story about the validity of a diagnosis that leads to criminal prosecution when diagnosed, I wouldn't rely upon an analysis of the merits by individuals who apparently appear only as defense witnesses.

PS. I'd also think MindHacks would find this more interesting as another example of the human tendency to find "controversies" about all sorts of things despite the facts: the link between vaccines and autism, the Moon landing hoax, the use of controlled detonations to cause the collapse of the WTC towers, not to mention old favorites such as FDR's complicity in Pearl Harbor, Communists at the State Department who were responsible for the fall of China and the Zionist chronicles.

To have survival value, the brain's disposition to recognize patterns doesn't have to be accurate: it just needs to benefit more than it burdens.
Comment previewed at December 7, 2008 05:22 PM
Looking for more reasons that demonstrate why we need the Education Begins At Home Act, and programs that support new parents, like the paradigmatic program developed by David Olds?

ScienceDigest reports on a study showing how neglect can adversely affect the brain development of children.

"Kids from lower socioeconomic levels show brain physiology patterns similar to someone who actually had damage in the frontal lobe as an adult," said Robert Knight, director of the institute and a UC Berkeley professor of psychology. "We found that kids are more likely to have a low response if they have low socioeconomic status, though not everyone who is poor has low frontal lobe response."
* * *
The researchers suspect that stressful environments and cognitive impoverishment are to blame, since in animals, stress and environmental deprivation have been shown to affect the prefrontal cortex.

That's not good, since it affects school performance. And it's not necessary: educating parents makes a difference.

It's important that parents have the opportunity to get basic information about their opportunity to provide interaction that will help stimulate development:

"In work that we and others have done, it really looks like something as simple and easily done as talking to your kids" can boost prefrontal cortex performance, Boyce said.

"We are certainly not blaming lower socioeconomic families for not talking to their kids – there are probably a zillion reasons why that happens," he said. "But changing developmental outcomes might involve something as accessible as helping parents to understand that it is important that kids sit down to dinner with their parents, and that over the course of that dinner it would be good for there to be a conversation and people saying things to each other."
Good post by Rick at Dadsworld on the need for patience when raising young children, and the importance of SBBS prevention and the PURPLE program (just as one example, Columbus Hosital's page describes PURPLE and not only provides some useful tips for babies, but about coping with post partum depression - PPD is not only a problem that affects 5 - 15% of mothers, but it increases stress for the entire family).

I offered the following comments:

As the father of an eleven month old boy wo died when he was shaken by his child care provider (a 51 year old grandmother, who was also caring for her two year old grandson that day), I'd like to thank you for this post.
It brings attention to the important role many - not all - hospitals are now playing in teaching new parents about the vulnerability of young children to head injuries, and the need to a coping plan for prepare for the inevitable moments of frustration.
Most importantly, it's an opportunity for parents to help protect their child.
In addition to learning that lesson themselves, new parents have to learn how to effectively educate others.
These days, the majority of children have another caregiver - sometimes a licensed child care provider, sometimes an "in home" provider, sometimes a relative.
A recent study on inflicted injuries in child care settings found that injuries were rare overall, but much more likely "in home" settings - which typically have one person - than in centers.
In any setting, inexperienced caregivers are a significant risk, especially with babies who have colic or "difficult" children.
They need education, and they need to know that it's OK to call you.
But as we learned, it's not just "inexperienced" cargivers.
It's important that you educate all caregivers (and not just about SBS - for babies and infants, SIDS risk reduction is also important).
It's also important to help them understand what "to do" to help calm your child, not just what "not to do."
PS. In most states, even licensed child care providers are not required to be educated about SBS, and at best babysitter classes typically have nothing more than an allusion in the training materials to telling students shaking babies is dangerous.
In addition to www.dontshake.com
I'd suggest parents visit www.copetocare.com
Beliefs on colic seems to have many of the same characteristics as religious beliefs, but this is an interesting article on colic and oofers some tips for parents coping with a baby who has colicky crying (especially about the importance of sharing the experience wit others)
Other resources are linked on our site:
www.skippervigil.com

Sunday, November 30, 2008

Unfortunately, another reminder from Florida about the need for SBS education in foster care programs. It's a sober reminder to the agencies operating foster care programs that the failure to educate foster parents increases their potential liability.

Boy In Shaken Baby Lawsuit Dies After 2 Years On Life Support

By RAY REYES - rreyes@tampatrib.com

Published: November 30, 2008

TAMPA - A child involved in a well-publicized "shaken baby" lawsuit and who had been on life support for more than two years died Friday, according to a former Pinellas County prosecutor.

State Rep. Darryl Rouson's law office represents the 3 1/2-year-old boy's mother. He said Sunday night that he will ask the state attorney's office to upgrade the charges for the child's foster caregiver, Tenesia Brown, from aggravated child abuse to murder.

Brown and her husband, Marcus, had custody of the child, Lazon, and his brother for nearly four months while their mother, Niccole Booze, completed a drug treatment program.

Brown is accused of shaking Lazon in March 2006, when he was still a toddler. Brown was charged on Nov. 1, 2006, with aggravated child abuse. She turned herself in to authorities and was released after posting $50,000 bail. Brown, a certified nurse's aide with no previous criminal record, has since been awaiting trial.

In 2006, Booze filed a civil lawsuit against the Browns and the Safe Children's Coalition, Directions for Mental Health and the Sarasota Family YMCA, the agencies responsible for caring for her children. Local agencies did "an absolutely shoddy job in vetting out foster parents," Rouson said. "She trusted her child to the system. But the baby suffered."
Today's Google News search brings a reminder from Vancouver, BC that all caregivers need education about the danger of inflicted injury and the necessity of preparing a coping plan. The circumstances aren't clear here, but some children placed in foster care will challenge the coping abilities of caregivers. Foster care programs need to incorporate training about SBS and SIDS when training foster parents who will be caring for babies, infants and toddlers.

Baby in critical condition may have been shaken: cops

10-week-old infant was in foster care; tests show brain injury

Times Colonist - Published: Saturday, November 29, 2008
A 10-week-old baby is in critical condition in hospital suffering from what police believe is shaken-baby syndrome. The child was in foster care, a ward of the province, at the time of the alleged assault, said Det. Paul Brailey of Central Saanich police yesterday.

Saturday, November 29, 2008

An interesting study (Medscape may require free registration to login) on implementing culturally competent substance abuse prevention training for teachers.

It offers some important tips on training the trainers:

Training as the Teaching of Adult Learners
Teachers also responded positively to the interactive, facilitated approach to learning—both for themselves and their students.
This aspect of training emerged as key to their learning of the content, their creation of models for their students, and their classroom instructional strategies (Kealey et al. 2000). Because the Implementer Manual contained all the materials needed for every activity in every lesson, teachers embraced the notion of stressing facilitated learning and practiced it during the training sessions, prior to undertaking the exercises in the classroom with their students.
Those planning for implementer training should ensure that all materials are provided; that they are attractive; that they are clearly organized and user-friendly; and that they reflect the philosophical approach to the training as well as the program for which the training is being provided.

Worth keeping in mind not only for training teachers to deliver prevention education in schools, but nurse educators in hospital based programs.

From Culture in the Classroom: Developing Teacher Proficiency in Delivering a Culturally-grounded Prevention Curriculum, Mary L. Harthun et al. Medscape (may require FREE subscription to login) J Prim Prev. 2008;29(5):435-454. ©2008 Springer
Springer Science+Business Media

Friday, November 28, 2008

Prevent Child Abuse America has sent President-elect Obama some excellent suggestions for preventing child abuse, instead of just responding to it...

Well worth reading, and well worth acting upon PCAA's invitation to let the transition team know you support those suggestions.

Wednesday, November 26, 2008
A letter from Prevent Child Abuse America to President-elect Barack Obama's transition team.
Below please find a letter Prevent Child Abuse America has forwarded to President-elect Barack Obama's transition team. We encourage you to send similar messages to the transition team at the address included in this letter, and/or through the online form. Feel free to borrow any language from from the letter and if you have any questions please do not hesitate to contact Bridget Gavaghan our Senior Director of Public Policy at bgavaghan@preventchildabuse.org.


The Honorable Barack Obama
Office of Presidential Transitions
Washington DC, 20270

Dear President-elect Obama:

Prevent Child Abuse America and our national network of 47 state chapters and over than 400 Healthy Families America home visitation programs, congratulate you on your election to the office of President of the United States of America. Like you, our organization believes that the early years are a critical time for a developing child. Please count on this organization’s knowledge, extensive communications network and support for public policies that address the problems that arise when a child is denied healthy childhood experiences. Research is clear that there is a relationship between child abuse and neglect and often life long consequences in many other areas, including chronic health problems, academic achievement, juvenile delinquency, criminal behavior, drug abuse and mental health issues. Our organization is committed to working with your Administration to help ensure that every child has the opportunity to grow up in a nurturing, stimulating and stable environment. Below for your consideration are policy recommendations to promote healthy child development based in proven prevention strategies.

1. Develop a National Strategy for Prevention

Sustainable change cannot occur until there is a national policy and commitment to prevent child abuse and neglect. Implementing a national strategy will require the coordination of federal agencies, and the assurance that all federal funding, policies, and regulations related to child well-being are coordinated and working towards complimentary goals. Our paper, A New Way of Thinking About Prevention from the First Focus book - Big Ideas for Children: Investing in our Nation's Future, outlines specific steps that our nation must take to embrace child abuse and neglect prevention in a more effective, meaningful, and comprehensive manner.

2. Invest in Evidence-Based Early Childhood Home Visitation

Prevent Child Abuse America is grateful for your support of early childhood home visitation, and for your commitment to making a range of quality home visiting programs more widely available, as evidenced by your support as Senator of the Education Begins at Home Act (EBAH). Introduced by Senators Hillary Clinton and Chris Bond and Representatives Danny Davis and Todd Platts, EBAH enjoys broad bipartisan support and has been endorsed by over 700 national, state and local organizations. The House Committee on Education & Labor passed EBAH earlier this year by a voice vote, setting the bill up for early action in the 111th Congress. I urge you to work with Congress to ensure the immediate enactment and funding of EBAH in 2009.

Thank you for promoting the successes of the Nurse-Family Partnership home visitation model throughout your campaign. Those same successes have been achieved in other home visitation service models and I ask that you extend your support to them as well. A compelling body of research demonstrates the measurable outcomes attributable to programs that employ home visitors with a wide range of backgrounds.

For example, results from the randomized trial of a Healthy Families New York program, based on the Healthy Families America model using Family Support Workers, showed that the program had positive effects in the areas of parenting and child abuse and neglect, birth outcomes, and health care. Please see the attached fact sheets for more information on the research supporting Healthy Families America, and the attached Evidence-based Early Childhood Home Visitation Programs for information on the research supporting a number of home visitation models.

3. Increase Investments in Prevention

For far too long, prevention has been undervalued and underfunded. We urge you to support increasing investments in prevention through both discretionary and mandatory funding mechanisms.

• Fully Fund the Child Abuse Prevention and Treatment Act: CAPTA embodies the federal commitment to preventing child maltreatment, but has not been funded adequately to meet the demand for community-based prevention programs. Please support fully funding the following components of CAPTA:
o CAPTA state grants, which provide funds for states to improve child protective services. Full funding will shorten the time that post-investigative services are delivered, and increase the number of children and families who receive these services.
o CAPTA community-based grants, which help states develop and implement effective approaches to preventing child abuse and neglect. Full funding will provide communities with additional support to implement effective prevention strategies such as parenting education, home visiting programs, mutual self-help support groups for parents, and crisis nurseries.
o CAPTA discretionary research and demonstration grants. Full funding will help pay for valuable data collection, technical assistance, and grant-funded research and demonstration projects. I also ask that you support the continuation of a $10 million allocation from this funding to support evidence-based home visitation.

• Fully Fund Promoting Safe and Stable Families: PSSF grants help states pay for family support, family preservation, family reunification, and adoption support. Unfortunately, the PSSF discretionary grant is currently funded at just $63.3 million. Fully funding the PSSF discretionary grant at $200 million will promote the expansion of family support services in communities across the nation and provide more intensive help for families in crisis. Research is clear that by investing in positive outcomes for children and families, family support and family strengthening programs can also lead to fewer incidences of child abuse and neglect.

• Reform the Child Welfare Financing Structure: States may access dollars under Title IV-E, the principal source of federal child welfare funding, only after children have been removed from their home and enter foster care. Of the $7.2 billion federal funds dedicated for child welfare in 2007, approximately 90 percent supported children in foster care placements ($4.5 billion) and children adopted from foster care ($2.0 billion). States can use about 10 percent of federal funding dedicated child welfare funds flexibly for family services and supports, including prevention or reunification services. Prevent Child Abuse America urges you to support initiatives that will secure adequate, guaranteed funding for front-end, prevention services while ensuring an effective approach to child welfare that provides for a full continuum of care.

• Fully Fund the Social Services Block Grant: HHS reports that SSBG funded preventive services for 29 percent of the total child recipients of preventive services in 2005. Despite the many critical services that SSBG makes possible, funding for the block grant has been chipped away over the past decade from a high of $2.8 billion a year to its current level of $1.7 billion a year. Prevent Child Abuse America urges you to support restoring SSBG to $2.8 billion.

• Enact the Shaken Baby Syndrome Prevention Act: Introduced by Senator Chris Dodd and Representative Nita Lowey, the legislation would provide $10 million to HHS to develop and implement a public information and education campaign aimed at preventing Shaken Baby Syndrome (SBS). SBS prevention programs have demonstrated that educating parents and other caregivers about healthy strategies for coping with a crying infant, infant soothing skills, and the danger of shaking young children can bring about a significant reduction in the number of SBS cases.

• Increase resources in the work of the Centers for Disease Control and Prevention (CDC) National Center for Injury Prevention and Control to address child maltreatment through a public health approach. This approach will compliment the other federal initiatives and efforts and can provide another inter-agency link toward a unified and integrative approach to address child abuse and neglect prevention. The CDC’s child maltreatment prevention work is designed to better understand the scope, causes, and consequences of child abuse and neglect, and to identify and disseminate effective prevention strategies. They are a critical partner in preventing child abuse and neglect from occurring in the first place.

Conclusion

Prevent Child Abuse America believes that there is no issue more important to the future of our society than how we raise our youth. Yet, a recent UNICEF report found the United Sates was ranked 20th in child well-being out of the world’s 21 wealthiest nations. The measures used by UNICEF represent educational, health and safety, material, and family and peer well being; measures that can reduce the potential for child maltreatment. The UNICEF study reinforces countless reports and government data showing that child neglect and maltreatment is a significant but preventable public health problem in our country today.

Research, such as the Adverse Childhood Experiences study, has shown that child abuse and neglect have life-long impacts, not only for child but for the nation. These studies show a strong correlation between child abuse and neglect and debilitating and chronic health consequences, delinquency, criminal behavior, mental health illness, drug dependency and lower academic performance.

Getting prevention right early is less costly to the nation, and to individuals, than trying to fix things later. Prevent Child Abuse America estimates that implementing effective policies and strategies to prevent child abuse and neglect can save taxpayers $104 billion per year. The cost of not doing so includes more than $33 billion in direct costs for foster care services, hospitalization, mental health treatment, and law enforcement. Indirect costs of over $70 billion include loss of productivity, as well as expenditures related to chronic health problems, special education, and the criminal justice system.

With your leadership, together we will finally be able to shift our federal policies from addressing the issues that arise because of child abuse and neglect towards making sure that abuse and neglect does not occur in the first place. Please consider Prevent Child Abuse America and our national network a resource to you as you consider opportunities to address this pressing issue.

Sincerely,

James M. Hmurovich President & CEO

cc: Melody Barnes, Director-designate, Domestic Policy Council
Peter Orszag, Office of Management and Budget Director-designate
Heather Higginbottom, Deputy Director-designate, Domestic Policy Council
Rob Nabors as Office of Management and Budget Deputy Director-designate

Tuesday, November 25, 2008

The Wall Street Journal had an interesting article [11/19/08 - requires subscription] about collaboration between Proctor & Gamble and Google.

One has enormous success selling ads and one has an enormous budget to buy ads, and together they're exploring better ways to reach consumers online.

One eye opener for those offering prevention messages - the eyeballs are spending more time on line:

Consumers ages 18 to 27 say they use the Internet nearly 13 hours a week, compared to viewing 10 hours of TV, according to market-data firm Forrester Research Inc. But currently, P&G -- so famously thorough at understanding consumers, it even tracks people's tooth-brushing strokes -- spends only a sliver of its ad budget online.

And there are significant differences between the media:

The rapid spread of high-speed Internet access "has been the biggest disruption to marketing," says Rob Norman, CEO of WPP Group's media-buying firm, GroupM Interaction Worldwide. A key factor, he argues: TV-watchers are passive viewers. But Internet-surfers are tougher to reach because they take a more active role in what they choose to view.

As the two companies started working together, the gulf between them quickly became apparent. In April, when actress Salma Hayek unveiled an ambitious promotion for P&G's Pampers brand, the Google team was stunned to learn that Pampers hadn't invited any "motherhood" bloggers -- women who run popular Web sites about child-rearing -- to attend the press conference.

"Where are the bloggers?" asked a Google staffer in disbelief, according one person present.

But the fundamental task common to both enterprises is surprisingly simple:

Google job-swappers have started adopting P&G's lingo. During a session on evaluating in-store displays, a P&G marketer described the company's standard method, known as "stop, hold, close": Product packaging first needs to "stop" a shopper, Mr. Lichtig said. "Hold" is a pause to read the label, and "close" is when a shopper puts the product in the cart.

Google's Ms. Chudy gasped. "This is just like our text ads," she said. The headline is the "stop," its description is the "hold" and the "close" is clicking through to the Web site.

"This is going to get so much easier, now that I'm learning their language," she said.

And that's the challenge for prevention marketing. Or phrased a bit differently, listen, hear and act.

We have a lot to learn about effective marketing from the likes of Google and Proctor & Gamble (whose marketing savvy includes not only the know how to market diapers, but razors too - BTW: why don't new parents leave the hospital with a baby bag that includes a disposable razor too), not to mention marketing icons like Seth Godin.
If you know of any good blogs on parenting or prevention that should be added to the Blogroll, please let me know.

Or feel free just to post a link to a good discussion on preventing inflicted injuries...

Friday, November 21, 2008

There can be connections between PPD, colic and inflicted injury. Expanding knowledge about the frequency of PPD and opportunities for treatment is an important prevention tool...

MCH LIBRARY RELEASES NEW EDITION OF KNOWLEDGE PATH ABOUT DEPRESSION DURING AND AFTER PREGNANCY Depression During and After Pregnancy: Knowledge Path is an electronic guide to recent resources about the prevalence and incidence of perinatal depression, identification and treatment, impact on the health and well-being of a new mother and her infant, and implications for service delivery. The MCH knowledge path contains information on Web sites, publications, and databases. Separate sections present resources for professionals (health professionals, policymakers, program administrators, and researchers) and for women experiencing perinatal depression and their families. The knowledge path is available at http://mchlibrary.info/KnowledgePaths/kp_postpartum.html.
An interesting letter to the editor from someone upset by lenient sentencing. For the most part, I can't agree with the prescribed remedies, but I certainly understand the frustration about sentences that are a slap on the wrist...

Upgrade punishment for shaking infants
Editor:Lebanon Daily News

Once again a parent got a slap on the wrist for abusing and shaking his baby. The courts determined that it wasn’t aggravated assault — it was only simple assault for putting his child on life support.

The justice system wants to nail people with petty crimes like a dime bag of weed,but when it comes to a 2-month-old baby on life support, all the judge and jury says is “please don’t do that again.” And the worst part about it is the parents always say, “the baby wouldn’t stop crying.” Welcome to parenthood, people! Babies cry because they are hungry, sick or just plain upset and tired. They have feelings just like the rest of us. How about if somebody shakes them for crying in the courtroom until their bones break and their eyes roll back in their heads?

Who has to suffer? The child does. He or she will never lead a normal life. Once they take that child off life support he or she won’t be alive anymore. So all the parents and baby-sitters who cause these babies shaken baby syndrome should be charged with murder or aggravated assault.

They all seem to make the most pathetic excuses of why they did it. Either they weren’t thinking, or they blacked out, or they have bipolar disorder. Give me a break.

If you know you are physically unstable, why risk it with your child? A child isn’t a person’s throw toy. Somebody may get five to 10 years in prison, but that child has a lifetime of problems physically, mentally and emotionally.

The people who do stuff like that to babies should be ordered by the courts to get spayed or neutered — they are animals. Some people might be offended, but just because someone gets upset doesn’t mean he can take it out on an infant. Go to the gym. Punch a pillow. Don’t take it out on the child.

Babies cry because they can’t talk. If they could then they wouldn’t cry. I don’t have any kids of my own, but I do have nieces and nephews, and yes, they cry. I would try to find out what is wrong. I could never look at them as an object to take frustrations out on. People want babies but they don’t want the responsibility of having a baby. I think all want-to-be parents should go to parenting classes before they decide to have a baby. We are supposed to protect our children from harm, not bring harm to them. I don’t judge because only God can do that.

The justice system should be a lot more stable and harsh for these types of crimes, because people know what shaking a baby does.

It doesn’t take much to seriously hurt an infant.

Charles Witherson
Lebanon

Tuesday, November 18, 2008

And finally, in Fayette County, Ohio, the Kiwanis Club is continuing its work to increase awareness of shaken baby syndrome

Cute donations carry serious message
The Kiwanis Club is providing Fayette County Memorial Hospital with bibs that are designed to make parents of newborn babies aware of the dangers of Shaken Baby Syndrome.

"It really is a wonderful donation," said Debbie McQuiniff, the nurse director at the hospital's birth center. "With the number of shaken baby incidents, we really hope that this helps convey the message of how dangerous it can be. We can also provide tips for new parents......coping mechanisms that they can use during stressful times."
Monday, November 17, 2008


Here's an interesting illustration from Coachr.org showing the differences in body proportions between a child and an adult.

And Dani Draws' website has anoher interesting sketch.

Should you prefer a more classic visual treatment, Martin Dace at www.dace.co.uk offers great illustrations and explanatory text.

Any of these illustrations help to explain how the combination of large head and weak neck muscles can contribute to injury...
Just a note - an alert came my way about three new journal articles that discuss SBS, including one by the "Buffalo Girls" (as I fondly refer to the excellent nurse-coordinators of the Upstate NY SBS Prevention Project), and one that discusses educational strategies for SBS education....

Shaken baby syndrome: diagnosis and treatment.
A Reynolds - Radiol Technol 1 Nov 2008 80(2): p. 151.
http://highwire.stanford.edu/cgi/medline/pmid;19005097

Shaken baby syndrome education program: nurses making a difference.
KM Smith and KA deGuehery - MCN Am J Matern Child Nurs 1 Nov 2008 33(6): p. 371.
http://highwire.stanford.edu/cgi/medline/pmid;18997573

Testing educational strategies for Shaken Baby Syndrome.
M Bailey, T Gress, D Bolden, and L Pfitzer - W V Med J 1 Nov 2008 104(6): p. 22.
http://highwire.stanford.edu/cgi/medline/pmid;19006900

Sunday, November 16, 2008

It's time to start work on SBS Awareness Week 2009 (actually, it's a bit past time to start, but don't let that stop you - there's plenty of time left..)

Senator Dodd's 2008 resolution and the supporting organizations for that resolution follow below.

2009 would be a good year to seek a concurrent resolution in the Senate AND the House for a couple of reasons: there will be new members and new committee assignments in both chambers, and this will be a new Congress, which means pending legislation has to be reintroduced.

Hopefully, SBS Awareness Week can springboard the SBS Prevention Act. It may help that the incoming administration seems to have an interest in early childhood issues. For example, President-elect Obama has joined as a Senate cosponsor of the Education Begins At Home Act.

So, any thoughts out there on:

- how the 2009 resolution can be crafted to highlight prevention?
- how to enhance support for SBS prevention in the House?
- additional organizations that should join as sponsors?
- local or regional activities during the Week that could help improve awareness?

Organizations that sponsor the resolution will be invited to put info and links on their website and include an article in their spring newsletter.

Any other ideas for synergy?

SBS Awareness Week Resolution 2008

S. Res. 518

WHEREAS the month of April has been designated ``National Child Abuse Prevention Month'' as an annual tradition initiated in 1979 by President Jimmy Carter;

WHEREAS the National Child Abuse and Neglect Data System figures reveal that more than 900,000 children were victims of abuse and neglect in the United States in 2006, causing
unspeakable pain and suffering for our most vulnerable citizens;

WHEREAS more than 4 children die as a result of abuse or neglect in the United States each day;

WHEREAS children younger than 1 year old accounted for approximately 44 percent of all child abuse and neglect fatalities in 2006, and children younger than 3 years old accounted for approximately 78 percent of all child abuse and neglect fatalities in 2006;

WHEREAS abusive head trauma, including the trauma known as Shaken Baby Syndrome, is recognized as the leading cause of death among physically abused children;

WHEREAS Shaken Baby Syndrome can result in loss of vision, brain damage, paralysis, seizures, or death;

WHEREAS 20 States have enacted statutes related to preventing and increasing awareness of Shaken Baby Syndrome;

WHEREAS medical professionals believe that thousands of additional cases of Shaken Baby Syndrome and other forms of abusive head trauma are being misdiagnosed or are undetected;

WHEREAS Shaken Baby Syndrome often results in permanent, irreparable brain damage or death of an infant and may result in extraordinary costs for medical care in only the first few
years of the life of the child;

WHEREAS the most effective solution for preventing Shaken Baby Syndrome is to prevent the abuse, and it is clear that the minimal costs of education and prevention programs may
prevent enormous medical and disability costs and immeasurable amounts of grief for many families;

WHEREAS prevention programs have demonstrated that educating new parents about the danger of shaking young children and how to protect their children from injury can significantly reduce the number of cases of Shaken Baby Syndrome;

WHEREAS education programs raise awareness and provide critically important information about Shaken Baby Syndrome to parents, caregivers, childcare providers, child protection employees, law enforcement personnel, health care professionals, and legal representatives;

WHEREAS National Shaken Baby Syndrome Awareness Week and efforts to prevent child abuse, including Shaken Baby Syndrome, are supported by groups across the United States, including groups formed by parents and relatives of children who have been killed or injured by shaking, whose mission is to educate the general public and professionals about Shaken Baby Syndrome and to increase support for victims and the families of the victims in the health care and criminal justice systems;

WHEREAS the Senate previously designated the third week of April 2007 as ``National Shaken Baby Syndrome Awareness Week''; and

WHEREAS the Senate strongly supports efforts to protect children from abuse and neglect: Now, therefore, be it

RESOLVED, That the Senate—

(1) designates the third week of April 2008 as ``National Shaken Baby Syndrome Awareness Week'';

(2) commends hospitals, child care councils, schools, community groups, and other organizations that are—

(A) working to increase awareness of the danger of shaking young children;
(B) educating parents and caregivers on how they can help protect children from injuries caused by abusive shaking; and
(C) helping families cope effectively with the challenges of child-rearing and other stresses in their lives; and

(3) encourages the people of the United States—

(A) to remember the victims of Shaken Baby Syndrome; and
(B) to participate in educational programs to help prevent Shaken Baby Syndrome.

Association of University Centers on Disabilities
Brain Injury Association of America
Child Welfare League of America
Children's Healthcare is a Legal Duty
Children's Safety Network
Congress of Neurological Surgeons
Easter Seals
Hannah Rose Foundation
National Association of Child Care Resource & Referral Agencies
National Association of State Head Injury Administrators
National Center for Learning Disabilities
National Child Abuse Coalition
National Exchange Club Foundation
Prevent Child Abuse America
Shaken Baby Prevention, Inc.
Shaken Baby Syndrome Prevention Plus
The Arc of the United States
The Center for Child Protection and Family Support
The National Association of Children's Hospitals and Related Institutions
The National Shaken Baby Coalition
United Cerebral Palsy
Voices for America's Children
D.C. Children's Trust Fund
National Family Partnership

Friday, November 14, 2008

Uh-oh!

The Exchange Club has a wonderful SBS awareness project, and has supported some great awareness activities, including support for the Period of PURPLE Crying campaign.

So, given that SBS is described as violently shaking a child, it's a bit surprising that a regional representative of the Exchange Club was quoted in an article in the Katy Times, TX yesterday as saying

“Please keep in mind that SBS does not always occur out of anger,” said Brenda Robinson, vice president of Region 5 of the National Exchange Club.

“Sometimes it’s simply playing with your child, bouncing them on your knee or just simply setting that child on your shoulder so they can see a parade roll by and they let go and fall back.”
It's become pretty clear to me that the best way to prevent inflicted injuries is not only educate parents and caregivers about the danger of shaking young children, but to help them understand the opportunities and learn what the kinds of things they can do to help the parent-child dyad flourish.

With that in mind, it's encouraging to see significant economic actors like the World Bank providing info on early childhood development.

Tuesday, November 11, 2008

Forgive me for being a bit cranky, but today brought a news story from WPTZ in Vermont that once again highlights how clueless (and I mean that in a literal, not unkind way - they may be clueless, but at least they're trying) about prevention some media folks can be.

A 13 month old boy is injured as a result of being shaken by a "babysitter."

Following a shot of the hospital, Reporter interviews "experts": Nurse, who teaches a babysitting course. Reporter then interviews director of the local child care resources center. Well-meaning people all...

If you watched it, the "lessons" you learned were:

- First, hire a licensed child care provider who knows CPR (um, CPR is good, but irrelevant: does Vermont require child care providers to be trained about the causes and consequences of shaking young children? I couldn't find anything about SBS prevention on the VT DCF site for child care providers, which isn't that unusual - most states don't require it. I did find some good SBS training, but it's for child welfare specialists: unfortunately, that's cart-before-the-horse training on how to deal with the consequences, instead of prevention...).

- Second, check references and do a criminal background check (um, "has she ever shaken your child?" - while this perpetrator is the exception to the rule, having a domestic violence "charge" driving with a suspended license, and having parole violations, most SBS cases don't involve someone with a criminal background). Oh, and given that most children are shaken by a parent or relative, just how helpful is advice to "hire someone you know personally"?

Not one mention that it might be a good idea to ask someone taking care of your child whether she has learned about shaken baby syndrome (or, for that matter, if your child is not a year old yet, SIDS), and whether she has a coping plan for those inevitable moments of frustration that do come when caring for a young child.

Given the absence of that critical info, it's particularly unfortunate and misleading that the televised report is "How You Can Protect Your Children..."

More on the story from the Burlington Press

Sunday, November 09, 2008

Gooznews.com comments on legislation introduced by Senator Clinton to create a federal trust for prevention health services.

It's not apparent from this (necessarily) short summary that the legislation will enable prevention efforts that "look upstream" for prevention opportunities. An obvious step would be education for new parents that enables them to influence health behaviors in early childhood.

Educating parents can have significant near-term benefits: a UCLA research project found that health literacy training for Head Start parents produced significant savings for Medicaid by helping parents learn to care for common childhood illnesses instead of bringing their children to emergency rooms and clinics for care.

October 14, 2008
Trust Wellness

New legislation dropped in the final days of a Congressional session obviously isn't going anywhere. But it does signal what that legislator thinks is important and plans to push next year. And when that legislator is Sen. Hillary Rodham Clinton and the bill involves health care, it merits close attention.

On October 1st, the junior senator from New York introduced a bill that would channel existing payments by both public and private insurers for preventive health services into a new Wellness Trust, which would then pay for all preventive services in this society. You can think of it as Medicare Part "P," except that it isn't just for the nation's elderly.

The new Wellness Trust would be run by 7-member board appointed by the president and approved by the Senate. Under S. 3674, the Wellness Trust in its first year of operation would commission and then issue reports on the best way to supplement the existing health care workforce with certified "prevention health workers"; establish new reimbursement systems that would "align incentives" with health promotion and disease prevention goals; and analyze current expenditures on prevention, which the bill estimates at 1 to 3 percent of health care costs or $20 billion to $60 billion.

A year in, with those reports in hand, the trustees would then begin collecting all payments made by Medicare, Medicaid and insurance companies for existing prevention services. The agency would then designate its own "prevention priorities." These would include community-based strategies like tobacco and alcohol counseling or diabetes prevention education, as well as the usual clinical services like the colonoscopies, mammograms and vaccinations that most people associate with preventive care.

With these priorities and money in hand, the Wellness Trust trustees would enter into contracts with certified prevention providers to deliver the services deemed the highest priorites "without regard to the insurance status of such individuals."

The legislation tracks closely to a report that Jeanne Lambrew, now at the University of Texas, wrote for the Hamilton Project at the Brookings Institution, which was created by former Secretary Treasury and Citicorp board member Robert Rubin to serve as a policy think tank for the next Democratic administration.

There's an outside chance the proposal will find a receptive ear in the next administration, whoever is elected. Prevention is included in the health care planks of both candidates. Yet neither has stressed the issue on the campaign trial.

That's not surprising. The conventional wisdom that recently emerged from the health care policy world is that strategies for preventing chronic disease -- which is responsible for 75 percent of all health care expenditures -- don't pay. They only add another layer of cost to the system and won't lower other health care expenditures for many years, if at all.

In my view, that's hogwash. Some prevention interventions lower costs, and some cost far more than they are worth -- just like health care interventions. For a critique of the new conventional wisdom on prevention, intially laid out in a New England Journal of Medicine article, see this GoozNews post.

The Clinton bill pushes back even harder. By centralizing all the money spent on prevention in a single agency, the government could deploy those limited resources in the most cost-effective manner. Moreover, it could target the populations most in need of prevention information, advice and services -- low and moderate-income people who are the most at risk of chronic disease because of poor education, low income, high stress, poor diet, and the lack of exercise that lead to unidentified or untreated pre-disease conditions like hypertension, high blood sugar, smoking, and alcohol abuse.

Right now, the prevention priorities of the nation are driven by who is best insured and a member of what University of Minnesota bioethicist Carl Elliott has called the worried well: educated consumers who know how to demand every high-end preventive service that health care providers can dream up. Have you been told yet that you ought to get a heart scan just to make sure there aren't any blockages forming in your arteries? I have, and I didn't appreciate the pressure to spend money out of my own pocket to get something I probably don't need.

Friday, November 07, 2008

I hope to start building some profiles of prevention programs to supplement the series of profiles available on the NACHRI site. This is only the conceptual framework, but the Ontario SBS Prevention Project being developed by Richard Volpe and the Ontario Neurotrauma Foundation is a good place to start.

With John Lewko, Richard has written a casebook on evidence based prevention programs. It's an excellent resource.

This chapter describes the Upstate NY SBS Prevention Project developed by Mark Dias.

NB The Upstate New York SBS Prevention Project was rated "promising" by the California Evidence Based Clearinghouse/

Thursday, November 06, 2008

The Robert Woods Johnson Foundation Center at the University of New Mexico will host a discussion with Ron Barr on prevention efforts...

RWJF Offers Lecture, Workshop on Shaken Baby Syndrome
Robert Wood Johnson Foundation Center for Health Policy at UNM presents a lecture, “Where the Rubber Hits the Road: How science can be translated into policy for prevention of shaken baby syndrome,” on Thursday, Nov. 13 from 12:30 – 2 p.m. in the Barbara & Bill Richardson Pavilion room 1500. Then, from 2:30 – 4 p.m., a workshop, “Community-wide, Culturally-sensitive Prevention Programs for Shaken Baby Syndrome: Principles and Challenges for Implementation,” is set in the same location. The events are part of the RWJF Fall Lecture Series.

Photo: Ron Barr, professor of Pediatrics, Faculty of Medicine, University of British Columbia

The lecture features Ronald Barr, Canada Research Chair in Community Child Health Research at the University of British Columbia. Barr is a professor of Pediatrics on the Faculty of Medicine at UBC, and director of the Centre for Community Child Health Research at the Child and Family Research Institute of the BC Children’s Hospital. He is also director of the “Experience-based Brain and Biological Development” Programme of the Canadian Institute for Advanced Research.

Barr will describe a primary, universal, community-based prevention program for Shaken Baby Syndrome.

This presentation will:

· Delineate four convergent lines of evidence for the program,
· describe the stages of its development,
· discuss the prerequisites for a primary prevention initiative,
· describe the development (including cross cultural focus groups), testing (randomized controlled trials of knowledge and behavior) and,
· discuss strategies and challenges for jurisdiction-wide implementation in North Carolina and British Columbia

Continuing Medical and Nursing Education is available.

The workshop features Marilyn Barr, founder and executive director of the National Center on Shaken Baby Syndrome in Canada, and Ronald Barr.
In this symposium workshop, the Barrs will describe their experience of effectively implementing the Period of PURPLE Crying prevention of shaken baby syndrome program. The Barrs will illustrate their discussion using specific examples from recent implementation projects in North Carolina and British Columbia.

Topics include:
· basic principles that need to be met to justify implementation jurisdiction-wide

· importance of timing and “doses” of intervention

· challenges and processes required for effective translations of the materials into eight languages

· importance of bringing about a cultural change in order to establish long-term
sustainability

· discussion of the 10 most “frequently asked questions” that implementation raises

For more information contact the RWJF Center at 277-0130 or rwjf@unm.edu.

Media Contact: Carolyn Gonzales, (505) 277-5920; e-mail: cgonzal@unm.edu

Wednesday, November 05, 2008

An article from Montana that once again points out the difficulty in prosecuting many SBS cases. One interesting aspect is that the case was tried in federal court, presumably because it took place on a reservation...

Jury acquits dad in shaken-baby case
By CLAIR JOHNSON
Of The Gazette Staff

A federal jury Tuesday afternoon acquitted a Busby man accused of seriously injuring his infant son by shaking him.

The panel found Merlin Wade Littlesun Sr., 22, not guilty of assault resulting in serious bodily injury after deliberating about 2½ hours in the two-day trial.

As the clerk announced the verdict, about a dozen of Littlesun's family members and supporters jumped to their feet and applauded and cheered the verdict, prompting an angry rebuke from Chief U.S. District Judge Richard Cebull.

"Get them out of here," yelled Cebull, who stood up and pointed at the group. Courtroom security guards directed Littlesun's supporters out of the courtroom and the building. After the courtroom had been cleared, the judge dismissed the indictment against Littlesun and ordered him released from custody.

Littlesun testified Tuesday morning that he did not shake his son as alleged on May 10, 2006. Littlesun's testimony lasted barely five minutes, and he gave mostly yes-or-no answers. Littlesun said he was sleeping when he is alleged to have shaken his 4-month-old son, Merlin Wade Littlesun Jr., hard enough to cause head trauma. He drove the baby's mother, Nicole Fisher, and his son to meet the ambulance as it was coming from Lame Deer, he said. Then he returned home to get a diaper bag and baby supplies.

Under questioning by Assistant U.S. Attorney Lori Suek, Littlesun said he was aware of bruises on the baby and asked Fisher about it but did not call the police or get the bruises checked. He suspected Fisher caused the injuries because "she just looked down," he said.

Littlesun also said he told the FBI agent he took responsibility for what happened even though he didn't do it. He acknowledged that he didn't tell investigators he suspected Fisher of causing the injuries.

The prosecution's witnesses included Fisher, others who were present in Littlesun's residence at the time and doctors who treated the baby.

Dr. Richard Stevens, a pediatrician who treated the infant, said the boy is now doing "quite well" even though his injuries were life-threatening. He was flown to a Denver hospital, where pressure on his brain was relieved.

In closing arguments, Suek recalled Fisher's testimony that she saw Littlesun in their bedroom holding the baby in his arms and that his head was shaking violently. She told him to stop and left the room. She could hear her baby crying but was afraid of Littlesun, she said.

Fisher went back in a few minutes later, picked up her baby and was holding him when he began having a seizure.

Fisher initially lied to investigators and medical personnel about what happened because she was scared of Littlesun's family, Suek said. She told the truth after she moved out of the house about a year later, she said.

Defense attorney Robert Kelleher Jr. argued in closing that Fisher caused the injuries and that there were serious problems with her testimony. According to Fisher's account, it was about 20 minutes after she allegedly saw Littlesun shaking their son until they called an ambulance.

But defense witness Dr. Thomas Bennett, a forensic pathologist who has studied shaken-baby syndrome, said a baby would experience seizures almost immediately after being shaken, Kelleher said. Bennett also said it can take only a few seconds to shake a baby hard enough to injure its brain.

Fisher was a 17-year-old mother of an infant and also had a toddler at the time, Kelleher said. She was "multitasking," trying to get breakfast ready and walking around the house with the baby, he continued, and "it only takes a second for her to snap and do this to the baby."

He also discounted Fisher's fear of Littlesun and his family. Fisher was alone with the doctors at St. Vincent Healthcare, where her son had been transferred from Lame Deer, and had the opportunity to say Littlesun caused the injuries.

"She did not tell anybody. Why? Because she's the one who did it," he said.

Tuesday, November 04, 2008

And welcome to the Hallmark Health Systems hospitals in Melrose and Medford, Masssachusetts, who have joined an effort spurred by Middlesex County's District Attorney, Gerry Leone, to educate new parents about Shaken Baby Syndrome before they leave the hospital.

Wednesday, October 29, 2008

Three news stories about Shaken Baby Syndrome caught my eye today:

Today's Hartford Courant has a compelling article by Kathy Megan about SBS. It shows the consequences of shaking a child, and discusses prevention activities in Connecticut...

The Cambridge Chronicle reports that the Cambridge Health Alliance and eight other Massachusetts hospitals will be joining an initiative undertaken by District Attorney Gerry Leone to educate new parents about the vulnerability of young children to shaking injuries.

Aiden Stein turned five this week. This article demonstrates that SBS truly begets tragedies upon tragedy. He survived being shaken by his father, but was left dumb and blind. His maternal grandmother believes his time has come. His paternal grandmother believes Aiden suffers from a birth defect.

And finally, sad news from the UK about a paramedic arrested for shaking his three month old son.

Tuesday, September 09, 2008

Mothergoosemouse posted about the changes that come with motherhood, anticipated or not.

She describes watching a shaken baby prevention video in hospital....

Before I had children of my own, I reacted to news of tragedies concerning children much differently. I was saddened, disturbed, sorry for the family - but it didn’t prey on my subconscious like it does now.

I can’t read the articles or listen to the news reports. I struggle with the blog posts,which are mercifully few and far between. Before being discharged from the
hospital with CJ, I was required to watch a video about shaken baby syndrome. I burst into tears afterward, and the visuals from the video stay with me even now. The “Never Shake a Baby” radio and TV ads cause me to change the channel. Even typing these words makes me well up.

This was my response....

I’m curious to know whether you think the hospital could have “framed” the
info in a way that would have changed your response.
We advocate for hospital based prevention education and encourage the nurses to present the information not as an obligation (”you should never shake your baby”) but as an opportunity (”this will help you learn about the causes of shaking injuries
so you can help protect your baby against injuries”).
It’s easier for the parents and for the educators. It’s easier for hospitals too: everyone benefits.
And it’s very important for parents to be able to educate - not just tell - all the other caregivers around their child (not just child care, but baby sitters, sibling, the neighbor who’s an emergency backup): shaking is dangerous to young children (up to 5 years old) and frustration is normal, so even good caregivers need to recognize when that response is getting out of hand and have a simple coping plan ready.
It can be as simple as putting the child in a safe place, catching your breathe and calling someone to vent for a few minutes. The first step can be hardest, especially for a parent: you have to acknowledge the stress…
And the best thing is that once a parent understands the importance of positively educating other caregivers, and accepts the role of educator, they reinforce their own knowledge and behavior.
It’s certainly scary to learn about something that could hurt your child which you
have no control over: it’s much better to learn about the danger and what
you can do to protect your child.
Eduation is effective. Hospitals in the Buffalo area of New York have been doing education since 1998: since they started, the rate of inflicted infant head injury has dropped by 50%.
So you may not be able to avoid thinking about the tragedies - there are more than most people realize - but I hope you will also take advantage of your opportunity to
share knowledge about preventing those injuries.

Monday, September 01, 2008

This summary of Australian research on parenting education prompts three thoughts:

- why did they create a parenting program (the "first"), rather than adapt and evaluate one that has been shown effective, such as the home-visiting program developed by David Olds?;
- as research seems to show that birth is the "teachable moment", why did they wait until 8 months to implement it?; and
- doesn't it seem that a reduction in harsh or abusive parenting behavior is a worthwhile result?

Parenting Program Does Not Prevent Toddler Behavior Problems, Study Shows
ScienceDaily (Feb. 3, 2008) — A study of the first universal parenting programme, designed to prevent early child behaviour problems, shows that it has little impact on toddler behaviour.
Behaviour problems affect up to 20 per cent of children and have major personal, societal and economic ramifications. Left untreated, up to half of behaviour problems in preschool children develop into later mental health problems.
Prevention targeted to high-risk families can be effective, but has limited reach and may stigmatise. Universal programmes offered to all families could address these concerns, but their effectiveness is uncertain.
The study, conducted at the Centre for Community Child Health (CCCH) in Melbourne, Australia, is published by the British Medical Journal.
Researchers from the CCCH and the Parenting Research Centre, with input from maternal and child health nurses, designed a programme suitable for all parents to be delivered by trained health professionals in primary care. The programme aimed to prevent child behaviour problems, such as defiance and aggression, and improve parenting and maternal mental health.
Over 700 mothers of 8 month-old infants participated in the study and were randomised to either the programme (three sessions at age 8-15 months) or usual care from their local Maternal and Child Health centre. Mothers were surveyed throughout the study and their mental health was assessed when their children reached 18 and 24 months.
At 18 months, child behaviour and parenting scores were similar between the two groups. By age 24 months, parents on the programme were less likely to report harsh or abusive parenting and unreasonable expectations of child development, but there was no improvement in maternal distress or toddler behaviour.
This was the first trial to evaluate a universal parenting programme involving families from all social backgrounds, say the authors.
They conclude that the outcomes are insufficient to support widespread introduction of this programme to prevent toddler behaviour problems.

BMJ-British Medical Journal (2008, February 3). Parenting Program Does Not Prevent Toddler Behavior Problems, Study Shows. ScienceDaily. Retrieved September 1, 2008, from http://www.sciencedaily.com/ /releases/2008/01/080131214534.htm