Sunday, July 13, 2008

I found this article on From a medical standpoint, I see merit in standardizing on a descriptive label. From an advocacy standpoint, I think SBS rings better and is truer to the goal of engaging parents.

And I emphatically disagree that that SBS is a "benign" term: if anything, medical terminology such as "ICN" is opaque and sterile to parents and caregivers - in a world where the Surgeon General acknowledges that only 13% of the American population has "proficient health literacy", and health information is usually presented at sixth to eighth grade reading levels, those terms are likely to be incomprehensible.

See the Surgeon Generals report on Improving Health Literacy for some ideas on what we need to do to improve health communications

And it's not medical professionals who have to be engaged by a prevention campaign: it's parents, and "discourse" is not what effective education is about....

ANS Adv Nurs Sci. 2008 Apr-Jun;31(2):E1-8. Links
Inflicted childhood neurotrauma.Fiske EA, Hall JM.
Carson-Newman College, Jefferson City, Tennessee 37760, USA.

In this article, we review literature related to inflicted childhood neurotrauma (ICN). We discuss the rationale for use of the term "ICN," rather than the more benign, commonly used "shaken baby syndrome." The change in language alters the discourse about a potentially lethal outcome or lifelong problem for survivors. A description of ICN is followed by a discussion of ethical parameters and obligations of those who care for infants and children and professionals who are sentinels to these events such as law enforcement officials, nurses, physicians, and social workers.

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